For those who dont know i am undiagnosed 48 years old woman with symptoms for 9 years. First neuro was on a different planet and wiped me of the bottom of her sole so to speak !! Just had a round of tests with a second neuro, LP , full mri, bloods, memory testing, and have been back to get all results.
Neuropsychology found some specific areas of weakness, ie navigational, organisational and facial recognition skills to be very poor but general memory all average for age etc. the specific problems were not correlated to any neuro probs such as dementia and he was happy with me, saying I probably always had these specific things and they were not anything to worry about.
The mri showed degeneration throughout the cervical spine. LP clear. She didnt mention the bloods but assume they were clear.
So her conclusion is nothing is wrong. I was hopeful that the degeneration would be the cause of all my symptoms (had already had a letter telling me about it) and that the pressure would be off.
She obviously read the notes from my previous neuro who basically said i was the ‘worried well’ because she said ‘me and Miss McD…, we do the same thing you know.’ And she repeatedly said ‘you havent got/it isnt ms’. Well I never said it was, I only even mentioned it to Miss McD (the first one) when seeing her. I expected her to read the notes but not to be biased. silly me.
Anyhow she wants my gp to refer me to a general medical consultant to look into other avenues, ie bacterial infections such as Lymes Disease, and not to send me to another neuro! cheeky. Of course it may well be something like that so I will go and see whoever she recommends. But I don’t think she should be saying not to send me to another neuro. If my gp sees fit to in the future it is up to him!
Oh yes, and she wants him to refer me for counselling? and cognitive behaviour therapy? eh? I asked why counselling and she said ‘well, you’re crying now’!!! I was crying because after 9 years of symptoms I was hopeful for AT LEAST a point in the right direction, not more of ‘Theres nothing wrong’. And cbt … well who knows how that fits in LOL!!
Anyhow, so still got the same symptoms, and still got the same limbo. Now don’t have a neuro, just a label as a hypocondriac. Well I don’t actually want to be ill, I just want to know whats wrong.
Guess I’ll have wait til something makes the right buttons light up!!
Hope you’all ok