Good point about the GP. They can deal with most day-to-day aspects of MS.
In four-and-a-half-years, I’ve yet to meet or speak to my MS nurse. I’m meeting her later this month re (very slight!) bladder issues, but didn’t request it, and don’t want it.
GP deals with all ordinary stuff. The only slight hitch was right at the start, when they didn’t want to prescribe Baclofen, and said it was the hospital’s job. I was caught piggy-in-the-middle, with both lots claiming the other should be prescribing, but neither disputing I needed it.
Thanks to the good people on here, I knew GPs are allowed to prescribe it, and that it didn’t have to be a neuro or MS nurse. So I went in and had a little bit of a shout (I’ve got a pretty long fuse, but there’s only so much…) Fortunately, I was able to say: “Look, I know you’re allowed to prescribe it, nobody’s arguing I don’t need it, so would somebody please just get on and DO IT, as I’m the patient, and I’ve been left without medicine!”
This worked like a shot. Touch wood, they’ve never argued about prescribing again, and said: “Oh, the hospital should be doing that!” I think I succeeded in bringing home to them how stupid it was that a patient with a serious illness could be left without medicine, while everyone bickers about whose responsibility it is.