Hi all, new here.hope ur all ok. I had a virus a few yrs ago, n started havin blood tests, which have now shown for 3 yrs that i have some kind of virus/infection, had lots of bloods tests etc. but they dont no where it is, then i started gettin dizzy n have bad migraines, so im under a neuro-otologist for this n take medication, last yr i then had a bad car crash n hurt my back, n am on lots of pain meds, n this yr i got referred to a neurologist re bloods, so again had more bloods n he was asking lots of question re achs, pains, fatigue etc, but back then i didnt have many symptoms, well jus wat i thought was pain crash pains n dizzy stuff, N then he said he wanted to do a MRI to check something in my spine. I didnt ask wat for. Since then i have got really ill, with more achs all over, spasms, pain, twitchin, fatigue, blurry eyes, already had IBS, but have constipation now which i never did b4. N lots of other stuff. My MRI was booked for Sept, but i got clausterphobic so cudnt go through with it, well my follow up apt with neurologist isnt until Feb. Anyways a friend suggested i might have ME, as i seem to of fitted all the sysptoms, and seemed to match wat doc was askin me, n now someone suggested MS, which also fits with the MRI side of things. Now im jus confused, have gone back to docs, n my doc has written to neurologist to get me in sooner, stil waitin to hear about that. My question is, does it sound more like MS, n does anyone know the main difference between MS n ME. Im also thinkin i will have to have the MRI to find out. Just wanted to share my confusin life lol V xx
ooh sorry its not a neurologist i see its a rheumatologist X
Hello, and welcome to the site
I’m afraid I don’t know a lot about ME - others should be able to help you out with that bit of your post though.
A lot of your symptoms are consistent with MS, but I guess it won’t be possible to separate out what’s because of your other conditions and what might be neurological until you have that MRI scan. I can tell you all sorts of facts showing that MRI is absolutely safe, but if you are badly claustrophobic, they probably won’t be enough to get you in the machine The way to definitely get round it is to be sedated - so you don’t know what’s going on. Someone else on here mentioned using a sleep mask too - really good idea I thought. So, e.g., you could get some valium from your GP and wear a mask maybe?
There’s a chance that they won’t make you have the MRI and only do a lumbar puncture, so you could ask about that. There are also a few “open MRI scanners” in the UK, so it might be possible to get sent to one of them.
Hey thanks for all ur replies. Well my rheumatology apt isnt until 2nd Feb, im only cancellation waitin list. So its jus amatter of waitin. V xx