I’m newly diagnosed but I’ve been having symptoms for four years, so it’s a relief to know I’m not going mad! The last couple of days have been relatively tough. I’ve been having speech problems and difficulty finding my words. I took a phone call from a nurse this morning (work related) and she asked after some long pauses and a few ‘uhms’ and ‘ers’ whether I was having a stroke. I embarrassingly replied ‘no, I’m fine, I just have MS’. I’m so worried about sounding like an idiot that it just keeps falling out my mouth.
I don’t remember ever being told by other people (who aren’t friends) about their conditions in casual conversation. My boyfriend said he wants to get me a badge - ‘Ask me about my MS?’ or ‘Ask me how my MS relates to your thing?’. He’s joking and we both have a good laugh about it, he’s been really supportive.
I guess it’s a personal decision, some people are more private than others and I’ve always been a ‘sharer’, wear my heart on my sleeve sort of person. And I don’t say it to get sympathetic looks. Just wondered about others feelings on this?