Telling children

My children are 14 (has asd,adhd and maturity/ emotional age of 9) 11 and 7. I’ve seen neurologist today who confirmed what we have know for a while that ms is a highly probable diagnosis for several ongoing issues. I have to have more bloods, autoimmune profile, t2 mri (had t1 contrast in June which showed significant damage, abnormalities and demyelination according to consultant) and lumbar puncture. My children are aware I’ve had issues for some time and that I have regular ophthalmology appointments and hospital appointments. Me and my husband feel it might be time to be a little more honest with them, I’m very aware that saying nothing about my appointments could make them worry more but at the same time telling them more could also worry them. Anyone got any advice please?

Thank you

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Hi Kim

Yes it’s a difficult one but you will know when it’s the right time. The MS society have free booklets, one of which is how to explain to children, that may be of help to you.

Wishing you all the best.

Pam x

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