Apologies if this has already been discussed or if I’ve posted this in the wrong place.
I’m new to the forum having recently been diagnosed with RR MS following 2 episodes of optic neuritis. I have 2 children (13 & 10) and my husband and I are deliberating what to tell them about my condition.
We feel we do need to tell them something but can’t decide how much to tell. Whilst my symptoms aren’t visible (at the moment) the stress and worry associated with the diagnosis is manifesting itself in other ways and I feel that my children deserve to know why I might be snappy or tired. Another major concern is that they may overhear something that they shouldn’t or maybe see a bookmarked page on my laptop or something that rings alarm bells.
My first instinct was not to mention MS itself as I was worried that they, particularly the 13 year old, might Google it and send them into a spin and I thought that maybe telling them about the optic neuritis would be enough to explain any changes they’ll inevitably notice at home but now I’m thinking maybe we can honest with them.
If anyone can offer any advice I’d be really grateful.