Just wondered for those of you who havehd to go to hospital cos symptoms so bad, did you takeyourself or did your GP/neuro send you?
I have had a terrible few days and can feel myself getting wrse and worse, can barely walk this morning, hands and legs shaking really badly, dizziness has completely taken over, can’t grip things, this is about my 5th attempt to write this so it is actually english not just gobbldygook.
For thoseof you who took yourselves to A&E , at what point did you feel the need to do this?
I really hate our local hopital, it’s really bad and so don t want to go there, but realy not sure I can cope n my own and feelin quite frightened which is’t like me at all.
Just don’t know what to do frthe best, don’t want to be a drama queen but I know deep down i’m really not well.
I went to the out-of-hours GP one Bank Holiday weekend when I had sudden vision trouble, because I didn’t know whether it was just MS (it was) or something like a detached retina that would need urgent attention. One time early in my MS career, I was also referred for an urgent MRI to see whether it was just MS (it was!) or a stroke (it wasn’t). I think the rule of thumb with MS is: definitely MS-related things are rarely urgent (with the exception of medical emergencies like acute urine retention) but things that are probably MS but might be something even worse need checking out sooner rather than later. If you don’t have an MS dx (and I think you don’t?) then it is doubly important that you don’t assume that stuff is MS when you don’t know for sure what is the matter with you yet. But I would have thought that your GP is usually the best first port of call.
Thanks Alosin, you’re right I don’t have MS dx so i’m not asumng how i feel is that, its just something relly not right.
I am due to have appt with neuro physio this morning don’t feel up to going buut think I will and ee what shesays, Apart from that i’ll give GP a call wen I get back. Im hoping it will juast pass and go away om its own.
I really feel for you. This limboland really sucks. These doctors are just not moving fast enough for you. You are like me not one doctor will agree what the other is saying. In situations like yours and mine a conference meeting with them all round the table discussing the issues might be preferable.
If I took a turn for the worst I would go to hospital, ask to be admitted to a neurology ward - even exagerate your symotoms if necessary. Maybe then when they can see you over a period of time as opposed to 10 minutes then they may step up their action. I just cant understand why you havent even been given a LP. Basically, go to hospital because when you are under their noses they cant ignore you,
I hope you get some help from Neuro this morning Bunnythecat. It’s horrible when you don’t feel well. My hospital is that bad…I’d only go if you put a gun to my head. xx
Thanks everyone, Saw my neuro physio this morning, she said i’m the worst she has ever seen me. I said i don’t want to go to hospital so she said i should at the very least get signed off sick for a while and make sure i get lots of rest. I havent called GP yet i felt a little better when i got back but since i got home have had 2 episodes of really bad shakes lasting about half hour. I hardly dare move at the moment.
I am due to see a different NEurologist who my GP has said will almost certainly want another MRI and an LP. Im just waiting for the appt but it has been delayed cos of Easter.!
I really dont want to but i think i’m going to have to call my boss in a minute and tell her i need few days off sick, unless i make a pretty dramatic recovery before tomorrow i know i wont be able to work.
If im no better in the morning I will call doctor, not that there is much can bbe done anyway.
Sorry to moan, i was just a bit frightened this morning. Iknow i’ll be ok in time, guess i just got to listen to my body more, not that i got much choice now ayway, my body is clearly making its own mind up and has gone on strike! xxx
i’m having the same problems as you at the moment,i get the shakes so bad that i crawl to bed and wait for it to pass,i dont know when to ask or for help,dont know how bad i have to get .i darnt take meself to a&e incase they admit me because i live on me own and got no-one to look after my dogs
i just struggle along as much as i can, proberly like most of us on here
I had a relapse and lost my legs couldnt walk at all went to a and e and they put me on iv steroids for 7 nights when legs came back physio taught me to walk they also gave me mri scan and lumber puncture i was in 9 days been out since last monday x
Hi Poll, I have my hubby and grown up kids so i;m looked after when they here byt all work long hours and i cant ask them to take time out to look after me. ive taken to my bed as it seems the safest place to be right now, my boss just called so i told her i wont be in till this passes, she understands.
if i am this bad tomorrow i will see if i can get a gp visit, also will chase neuro appt as would prob be helpful for him to see me while i’m like this.
God i chuffin hate this, i’m a really positive person normally but its really getting me down now.
Thank you, and everyone else for the lovely support as usual xx
Hi Poll, I have my hubby and grown up kids so i;m looked after when they here byt all work long hours and i cant ask them to take time out to look after me. ive taken to my bed as it seems the safest place to be right now, my boss just called so i told her i wont be in till this passes, she understands.
if i am this bad tomorrow i will see if i can get a gp visit, also will chase neuro appt as would prob be helpful for him to see me while i’m like this.
God i chuffin hate this, i’m a really positive person normally but its really getting me down now.
Thank you, and everyone else for the lovely support as usual xx
Okay hun. Glad to hear you are not totally on your own.
Sometimes when hubby has to go out, bed is the safest place for me too.
Once when he left me in my recliner, I needed the loo, and tried to transfer from wheelie to commode and got in a right state…ended up pooing meself…cant pull my lower clothes down anyway, so dunno why I tried. I was totally knackered.
Hi, I totally hear where you are coming from, you wait for the appointment to come through and grit your teeth, a & e is there but you are afraid to go and put up with the pain rather than push ahead and speed the process up, though by the sounds of it you would be totally justified. I think as mothers and wives we are so used to caring for others that we don’t want to be a burden but hey you have nursed them many times over and at the end of a hard day no doubt. We all need some tlc. Like so many on here you clearly need help and a definite diagnosis. Like you when I am at my worse I take to my bed, but all that does is isolate us further. You um and err and over-think ringing work until they beat you to it and they ring you, relief then as the choice is no longer yours. Hang in there I hope your appointments come through quick and you get sorted, you have may every sympathy x.