hello everyone my name is melissa. I was diagnosed with rms about 5 years ago after having an mri done. I had suspected for a long while that I had ms but could never get anyone to listen or do any of the testing needed do to an opioid addiction issue. even if I didn’t go in asking for any meds period after I would tell which ever doctor I was seeing that I was experience an unusually large amount of pain I my legs they would usually shut down the conversation with a well I think your just here for drugs!!! my Aunt mothers sister had ms and I watched her go from being a normal lively mother of 2 and business woman to being confined to a wheelchair in less then 5 years time. and I remember my grand father giving her weekly injections not sure which med it was at the time but regardless it didn’t help her. I have now had another severely abnormal mri and apparently I now have lesions on my spine where when the first was done they wee only on my brain. I have not yet seen a neurologist mainly because since being diagnosed and told that think I have probably had it for the better part of 15 or so years! I kinda shut down to it all together and I guess in some weird way thought that if I just didn’t deal with it then it wasn’t true. stupid I know. but now I am attempting to start dealing with it but finding a problem with locating a neurologist. at the beginning of the summer I had a pretty severe relapse that caused paralosis of my left side that lasted for almost a full month. recently I have been experiencing humming or vibrating in the lower part of my right leg and ALOT of pain in both my knees. has anyone else had a big issue with the pain aspect of ms? any suggestions on things I could do to try and help with the pain other then pain meds and also for the humming feeling. please and thank you.
Hi - you might speak with your GP about medication for the neuropathic pain you have, appreciating the previous opioid issue, the GP should be able to prescribe something to help with the neuro-pain. eg. Gabapentin / Amitriptyline either singly or in combination (which is what I am on) which can be very useful in keeping the pain to a level that can be tolerated.
Keep pushing for a Neurology appointment - the progression needs to be discussed, and also whether or not you will be able to have DMT’s specific for MS.
Hi there, I can’t add anything in addition to the suggestions from @TheresaB says. Definitely find a neurologist as soon as you can though!