Hello, That was a ton of reading to get through So This isnāt to worry you, more of me trying to relate really. I was diagnosed within 5 months. I had a huge list of altered sensation that after 3 weeks made me have a little break down. One thing I can relate to was my cold legs! I was normal temp when the wife felt me but I felt like I was in a freezer. I was wearing thermals and socks to bed lol. The pins and needles were in my lower half of my body for months. However I was prescribed Gaberpentin which is a neuropathic pain killer and it was a game changer and helped me cope. So it might be worth running that by your GP. Overall Iāve healed from majority of my issues so I hope you have a speedy recovery even if itās not MS. And if it is MS itās literally not the end of everything. Iām confident theyāll figure out how to halt it or repair any damaged caused by it in the not to distant future
Hey Ralee,
Thanks for responding.
Did it take a while to diagnose then? What kind of tests did you have? Had you had your symptoms for a long time? Sorry so many questions I know. I had pins and needles a few weeks ago and they have come back again. My right leg feels so weak too, going to try and go cycling tomorrow to sort of test it. Would you recommend that. I can relate to how you felt as I feel like that right now. Any tips at all?
I want to book a doctors appointment but I donāt at the moment because of the virus so donāt want to take up the docs time. Did they still prescribe it even though they didnāt know what it was at the time? I really need something to help with the pain itās so painful and worrying. As its just there all the time and I keep fretting all the time.
Is it really expensive to have the tests done privately?
I literally feel like itās consuming me. But, I guess thatās what happens and especially with the fear of the unknown too xx
It only took 5 months from onset of my last relapse. Brain and Spinal MRI 2 lesions on each so 4 in total and I had a probable relapse around 6 months before that with Bladder urgency which lasted 6 weeks. Neuro said there was no need for a spinal tap yet. No idea on private. I got lucky with my appointments because I phoned up and got several cancellations. Waiting time for a neuro here is 12 months, I saw them the next day when I got my appointment letter through because I called up asking if anyone cancelled lol.
Hey,
Thatās good that you got seen quickly then :).
Have you had symptoms for over a year then. Has the meds got rid of the pins and needles?
Sounds like the meds was a pain changer for you, which defo is a good thing
I guess so yeh, but not continuously though What ever happens for you, you will be ok. Just hang in there and remember this, be kind to yourself and itās ok not to be ok.
Hey,
Thanks. Just all feels so worrying with all of these sensations and I just wish they would go and I wish I knew what was causing them
Hi, I have recently been diagnosed with relapsing MS and have been a Type 1 Insulin dependent Diabetic since 11 years of age (34 years ago), I am wondering if there is anyone on here that can explain how to manage both conditions together? Thanks in advance.