i am so confused and tired with all this and haven’t a clue which way to turn really. My symptoms started with a severe fatigue by which I don’t mean tired but a heavy achy feeling where I struggle to carry out simple activities without the need to have to sit down and rest a lot. I also get a feeling of breathlessness ( like my body is just to tired to breath well). This phase went and I started feeling ok again then I started having problems with my left eye. Aching blurred vision and my eye lid deciding it just didn’t want to open sometimes. I have also had an upper tingling, annoying feeling in my upper back. At times I have woken with muscle stiffness this can be calf cramps or my neck in total stiffness and I have trouble getting up or moving because of the pain. The neck pain went away so I ignored that but went to the doctors about my eye. Fast forward and I saw an ophthalmologist who booked a brain and orbit MRI, looking for mysthania graves and something else. All blood came back normal and the orbit and brain scan were normal. I got the results to that today and feel pretty down as I know there is something going on and really do match up with ms ( it’s like I know I have it but can’t prove it to the doctors) This last week I’ve had another what I call episode ( after the MRI) with fatigue, breathlessness, the upper tingling in back is back and now I have a numb tingling 4th toe on the left side. I told my opth at the hospital today and she said go back to your doctors and see what they say ( I’m in the uk) it’s been a long road to get this far and the prospect of going back to the doctor who is probably going to spout about the MRI being clear and nothing else! Help guys what do I do? I feel ill but also feel like I don’t have the right to be ill or the right to the help to cope, it’s so distressing. And it’s crushing my esteem as I’m literally being told it’s in my head and it really is not at all. My episodes seem to happen just after ovulation and after my time of the month. I’m not anemic, b12 deficient or celiac or anything else. I totally believe I’m an ms’er that just wants to be heard so I can have some inner peace.
thankyou so much for listenening,