I have symptoms but a clear MRI?

Hey everyone,

Basically I have been having weird symptoms for about a year and a half now. Went to the Gp last june and he referred me to a neurologist who conducted a Brain and Cervical Spine MRI. After 2 anxious weeks (heck you all know what i’m talking about) The results came back clear and I was basically told “we can’t find anything, go and live your life”.

Which was great at first but, like my symptoms just never really went away, to be brief i just have this undefined weakness on te right side of my body and patches of numbness on my right leg and right eyelid. I also noticed my right lip went numb to the point that my smile is a little asymmetrical which bugs me to no end. I also have general issues with things such as brain fog.

So, I’m heading back to the Neuro in Feb to have a second opinion as i’m very perplexed, if i have had a clear Brain and Neck MRI what are the chances they will find anything again? I suppose they may want to check my Spine but from what I have read it is unlikely they will find anything.

I’m a 25 yr old male who frankly is just bloody tired of this and just wants to get on with my life.

Any advice would be welcome

Peace.

I’m the same, symtpoms but clear mri. I had a few weeks weeks of tingling sensation in my left foot (up to ankle like a sock) and my left arm and part of my hand (like an evening glove) a tingling mouth, pretty bad dizziness and fatigue. My brain and cervical spine MRI came back clear but my neurologist still suspected inflammation (I have a history of odd symtpoms for a while before this) and gave me steroids which sorted out the worst of my symptoms but I have been left with numb toes on my foot and a strange sensation at the front of my ankle of pressure or something (not sore, just like im wearing a tight half sock!) that comes and goes daily. I keep getting odd little things but nothing too major, like for the past few days my ring and pinky finger and the side of my hand have been tingling. I guess every neurologist seems to just decide things for themselves as mine seems to think I still may develop MS (he said 50/50 chance). I’m hoping not and I’ve no idea how he has decided this! I’m back to see him in a couple of weeks so I’m hoping he can do some more tests to try and find out what is causing my symptoms. I bet there aren’t many people in the world who are hoping for a lumbar puncture but I certainly am! I hope you get some answers from your next neuro, or if not any definite answers then at least one who will continue to search for a cause. Sorry, I just realised there was no advice here but at least you know you’re not alone!

Ha, yes it’s good to hear, i mean i don’t want MS but i hate feeling like i have to keep going back to the neuro.

Hi to SB and templewater

The trouble is that when you have these weird symptoms you want a diagnosis of what’s wrong. Even a crappy diagnosis is better than none. At least then you know what you’re fighting. And can get some ammunition (i.e. drugs).

But, MS is a funny old thing. Many symptoms also fit other diagnoses, and sometimes people are diagnosed without ‘classic’ positive tests.

All any of us can say is to keep on seeing the neurologist, keep pushing for tests to rule in or out different things, make sure you’ve been tested (probably by your GP) for vitamin D deficiency as that can sometimes look like MS.

If you’re offered more MRIs or a lumbar puncture, then go for it. Neither is definitely going to rule in or out MS, but they might.and keep talking to your GP and neurologist. You could try writing a daily diary of your symptoms so you can give a full report to the neuro.

Best of luck

Sue

Hi I have very similar symptoms to described above, numbness, tingling, particularly lower legs and had patches on my face. I have to ask does anyone else walk like Pingu ? I feel like I have flippers where my feet used to move, and its hard to move my toes, particularly on my left foot.