Hey is it possible to have a clear MRI and still have MS? My MRI was clear with no lesions. Not looking for medical advice just wondering if anyone experienced this.
I have been having blurry vision, weakness, and balance issues. My biggest issue is tingliness and numbness in hands and feet and sometimes face.
Been dizzy recently but that’s probably because I had no appetite and am having trouble keeping food down which I know is not an MS symptom.
Dr. Recently mentioned they are suspecting MS but MRI was clear so that was good but said it doesn’t mean I’m not having symptoms. It’s just confusing as heck. Just got sent for a ton of blood work, EKG and urine analysis. I think he’s trying to see if anything else going on.
It’s so frustrating because not that I want to have MS. I don’t but if I do I want a diagnosis. I rather know what’s going on then not.
I’m starting to think it’s all in my head and maybe I’m making it up but recently stuff has been so debilitating I’m struggling to work and people are noticing. I know it could be something else or maybe just stress. Again not looking for medical advice but more has anyone experienced symptoms and a clear MRI.
Also what does an MS hug feel like. Im wondering if I’m experiencing that. Googled it and can relate but don’t wanta rely on Google.
I am so exhausted right now I’m barely functioning. So my mind is mush.
Yesterday I went outside and it was raining and sat down on a chair and got wet. I had to laugh at myself. Brain fog/ balance/ weakness. Was not thinking chair would be wet only that I needed to sit down.
I am having trouble falling asleep which is making stuff worse and not sleeping enough but I’m absolutely exhausted. I feel like my world is falling apart emotionally and physically and I don’t know what’s going on. I obviously know you guys can’t give answers that’s the doctor job but I just need to freaking vent.
I have a massive headache too.
I apologize if I’m taking up space and this post doesn’t belong here. Just confused and frustrated at the moment.
Absolutely no need to apologise, the worst that can happen is that nobody answers your comment so there’s no need to worry. About posting in the forums at least!
I’m definitely no expert in this, but I I think the way to look at it is not that there were no lesions, just that the MRI couldn’t pick any up. The MRI doesn’t go into ultra high definition, so it is slightly limited in what it shows. If you’re having vision problems a lot of opticians now do the photograph of the Iris, and it gets an image right to the back of the eye where the optic nerve is, and that can sometimes show if there’s any inflammation there.
Have you had a lumbar puncture? Every time you get a relapse it leaves some markers in the cerebral spinal fluid and that’s what they’re looking for when they do the lp. One of the that takes time getting a diagnosis is ruling out all of the other things that might be, so it’s not unusual I think for them to do it like that for you.
What should help is if you keep a diary of all the different things are experiencing. Apart from being really useful when you go and see your consultant it’s also a good way to take things out of your brain and put them down in paper. I think one of the things that drove me to distraction when I was waiting to be diagnosed and for a few years afterwards is that you become hypervigilant about everything wondering if it is isn’t a new relapse of something. I think it’s human nature, I wish I could tell you there was a way that I found to stop it getting in my head but I think I just became less worried about them and so I ignored them. As much as it was possible to.
I am yet to experience the MS hug. I thought I had it a couple of times but it turned out to be angina. I ended up in hospital four times with chest pains, and I made the mistake of mentioning the MS hug. It was a mistake because they then stopped investigating anything else and just sent me home telling me to speak to my neurologist if the hug became a problem. Eventually my GP read my notes and kicked off about it I should’ve been referred to cardiology… 12 months later, and I’m on the waiting list but I do have the spray that you use that you’re having an angina attack and it works a treat.
It’s not all in your head, the things you’re experiencing are real and they’re affecting you. You did mention stress, and stress makes MS worse. Which really isn’t helpful to know, is it! The MS Society helpline is also great for vomiting all of the anxiety out of your brain, they are good listeners and they’ll know what you’re going through.
I totally get where your coming from, I have been experiencing a lot of the same symptoms as you, had numerous tests done and my GP surgery which have been useless up until a trainee ANP looked at everything going on and said you need to be referred to Neuro, she mentioned ms. So since then I have been researching a lot and yes in my head I’ve diagnosed myself as we humans do. I don’t wish I had ms but if I do I want the diagnosis so I can finally start to get some help.
I’m fed up stuck in limbo so have made a private clinic appointment with Neuro. Not that I can really afford to go down the private route but I can’t wait for the 1 year waiting list that my NHS currently has.
Hope your doing ok, I’ve found recently that if I don’t sweat the small stuff ( like the house not being tidy) I can cope a bit better with the bigger stuff!
It’s frustrating. I don’t want MS either but if it’s that I want answers.
It’s impacting my ability to work. I was suppose to go visit my family for Easter but had to cancel the trip because too weak and it’s a long trip.
I am trying to not sweat the small stuff.
Trying to laugh at myself when I trip over stuff and lose my balance because if not I think I will cry.
Tingliness just is constant right now but intensity comes and goes.
It’s scary because if this is what it is then it will only get worse and that is scary.
My blurry vision just makes it hard to read sometimes.
I got out today because if stay inside I’ll go insane. I got to conserve my energy and do things I can do. Maybe I will figure out what works for me and what doesn’t even without a diagnosis. Maybe it’s not MS but more read about it more I can relate. Even medical staff say it’s not all in my head. Receptionist at Drs talked about repeating MRI. I’m going ask them to use contrast this time they didn’t last time and maybe check spine because didn’t last time. Also, mentioned making a referral to neurologist. I guess finally someone taking me seriously.