Hi guys still trying to figure out how to use this site…so im wondering…can you have MS and have symtoms which come and go…well they dont go completely but some days are bad and some days its not as bad…but they dont completely go…maybe its not MS but i know its not all in my head
Any advise or opinions are welcome as i feel like im going blimming mad sometimes…got a CT scan on xmas eve but think it will be like all my past MRI scans and show nothing even tho i feel worse than when i had the last MRI
I feel EXACTLY the same! It’s driving me bonkers! my symptoms come and go like today my muscle was having a little spasm in my leg whilst I was sat on the train then my fingers were numb in the morning. and I had sharp shooting pain which travels around my body…
Just wondering if you are diagnosed with MS or if it could possibly be something else?
When’s your next consultation it may be worth asking them what made them say yes it’s ms if nothing showed up in mri’s? (its always good to question them)
I sometimes think of multiple sclerosis as a never ending ride unfortunately: unbearably bumpy, lots of ups and downs, very unpredictable --well that’s my analogy.
Hope the CT scan sheds light on your symptoms, best regards.
I am nearing two years since I was diagnosed myself, and it has been as you say borderline madness at times. I find I have waves during the day and that for example my buzzing prickly locations as such go from very uncomfortable and bothersome to almost not noticeable.
Interestingly enough I have noticed that whenever I go to my doctor to describe my symptoms they are the least obvious and most obscure. I can sit there wondering if I do indeed have any illness at all having flailed around all morning unable to properly walk down the stairs at my home.
This then tends to make it rather hard to explain the feeling and locations to my doctor. This has delayed treatment more than once at this point, so if I may give some advice, try to just take a bunch of memos whenever you notice stuff. Even if absolutely nothing else, you will at least be able to perhaps get a little more of an overview yourself, and it could help your doctor too.
That said, there are several diseases with similar symptoms. Have they checked your spinal fluid for example?
I am not an expert, but isn’t a CT scan rather heavy radiation? I have at least made a point of refusing it as much as possible in favour of MRIs. Here in Japan they are the cheap easy scan at least, with MRI being the more expensive serious one, sort of. But that could just be my mistake entirely. Pretty sure I was told to avoid CT scans as much as possible due to high radiation though. But the first time I was hospitalised which eventually lead them to figure out it was MS, they did start with a CT scan, and they couldn’t see anything like sclerosis there. They were basically just looking for blot clots and other types of damage it seemed. The MRI then showed the various wounds.
But I have had lots of MRIs with nothing new to show despite many new symptoms. The wounds would then often show up a little later. So could be a similar case that you’re feeling the symptoms, but it is not big enough to see yet.
Well, I ended up rather blabbering, sorry about that. I hope I managed to hit some relevant points at least! Hopefully you’ll be able to figure it out!
Hi they have said its was M.E…then fibromyalgia and then functional neurological disorder…now they doing Ct scan to see if its been a stroke or possible Ms…this time the nerve pain and lack of reflex responce has stayed…and my immune system is shot to pieces i feel like i have flu…its crazy just want to know for sure now why ive been so poorly for 20 years