Hi is any one hear from or around sw london or surrey?x
I am, im in morden
Hi ssamm I used to live in morden, 
near kingston now. Have you been diagnosed? What hospital do you go to? I’ve not been diagnosed but have many symptoms. How are you getting on? X
I was given the definate that i have it tuesday just gone. Ive been to a few places but now at st georges. When my symptoms where at the worst, no feeling in left arm, no coordination what so ever, my shoulder dropped as there was no strenght in the muscle. I was in agony, my doctors gave me cortazone injections which just hurt, they thought it was a trapped nerve, although they should have sent me for scans first which they didnt, they wanted to do a couple more injections too. But one night i was so stressed out from it all and the pain wad unbarable, i decided to go to a&e at st helier. I got there at 7pm, was seen by 9pm, but it was a doctor still in training basically. All i thought at the time aas great, thats all i need. However, his shift was finishing at 11, he stayed at the hospital with me till 3am. Doing xrays, countless bloodtests, his first thought was MS, he said it was extreamly unlikely, but then he personally refered me for the mri, amd to see the neurologist. which lead to showing the lesions in my spine and brain. Wish i knew his name now to thank him! Never doubt the trainees, they are more curious and new to the job, so not grumpy people sat in a&e just going next, next. Lol
Wow, he was on the ball. That’s good it was investigated and diagnosed so quickly. I hope you are feeling better. I went to kingston hospital and was told there are no signs of neurological problems but symptoms are getting worse. I have asked my gp to refer me to uclh in london for second opinion. Feel so fed up of feeling unwell, I’m only 32 and have 3 children under 5 and feel sad all the time. Hope to get to the bottom of it soon. Sorry for the moan! Do you have support at home? X
I do yes, im 23, so still live with parents. I think initially my dad didnt want to believe it was true, he just kept calling me lazy and saying i was making it all up, and my mum was abit better but not much, but she came with to my appointment, for a better understanding, and will come to my other appoinyments, so its much better now. My boyfriend is allright about it too, as he said, least im not just clumsy, theres a reason!
That’s great you have your family and boyfriend its hard when people don’t understand, I feel my husband thinks I’m lazy or over reacting and for me its the fear of what’s next! I will be visiting family in morden next week - small world! Lol x
Yes it is, up untill tge other day my dad wasnt understanding at all, how he reacted really upset me, but there was nothing i could do,but my MS doctor gave me a very big information pack and my dad has read it, so now at least theres a better understanding. He seems to think if one day im feeling better then im better, but im allways feeling so up and down like a merry go round, ill have plans to do stuff, like clean my room, sorting out junk, give the fish tank a big clean, take the dog for a extra long walk, then i wake up, and have no moivation or energy to do anything. And some days ill be bouncing around doing it all.