Hi all,
My husband was diagnosed with Relapsing remitting March 2004 at which time we didn’t have any children. Now, 13 years on, with a 10 year old son, and a new diagnosis of secondary progressive, things are a little more difficult. We manage very well day to day and other than several relapses my husband had done very well. The latest relapse at the end of last year saw him admitted to hospital and being tested for a stroke. Needless to say, we didn’t panic too much as we were pretty sure it was not a stroke but something causing a relapse of symptoms. 4 days later it was confirmed to be as we had expected and he was allowed home. We thought things would get back to “normal” fairly quickly, which mostly it did, but we have now got a very emotional 10 year old. He worries constantly that this is all going to happen again and i am running out of ways to reassure him. Any ideas would be greatly appreciated. xxx
Hi
The MS Trust has a kids guide to MS: Shop - MS Trust
I’m otherwise completely in the dark as I have no children. But I can imagine it’s a frightening thing to worry so much about a parent.
Best of luck with it.
Sue
hi estietwig
your son needs to know that his dad isn’t scared.
he needs to be told directly by his dad that there is nothing to worry about.
having said that, i’m terrified most of the time but when asked, i’m fine.
maybe you could ask his teacher to work on a topic - people who need my help.
if your son could be told what helps his dad, he could muck in and would feel better,
show your son the illustrations in Relapsing Remitting Multiple Sclerosis (free from this site)
it shows how myelin has been nibbled away.
they should be learning about basic electricity at his age so the anomoly of faulty wiring should be easy to understand.
bless him for being such a sensitive sweetheart.
good luck
carole x
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Thank you Sue. We have never felt the need to seek support before, or even to look at info as he has breezed through the last 13 years really well. Thinks are getting more noticeable now tho so i think that,s why my son is picking up on it more. Have downloaded the publication that you suggested and it looks fab. Thank you.x
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Thanks for the suggestions Carole. We have had chats with him like the ones you have suggested and they have always seemed to help. I think its just that things are more noticeable now and the fact that hes 10 so is more aware. He is also seeing the family support worker at school now and she is helping him lots.
Thanks for your reply.xx
it will stay with me because i have two sons of my own (27 and 29)
they were the sweetest little b***ers.
they were also very understanding.
enjoy your lovely family
carole x
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Hi EstieTwig
Bless your son he sounds like an absolute sweetheart !
I am sure he will be okay he just has to have time to come to terms with it in his own way at his own pace, which I believe he will because ultimately that is what he will have to do. Uncertainty is a part of life with or without illness/disease no one knows what will happen tomorrow and so your son learning how to deal with this now will probably put him in good stead for life.
I wish you and your family all the very best and lots of happy times x
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My heart goes out to you honey.they can be so resilient.he is growing up so his way of thinking
And dealing with things is changing.just both you and your hubby be there for him.
Listen to the things that. He isn’t saying. He seems a sensitive wee soul .all that’s left for me to
Say is cuddle your whole family and take time and care with them .wishing you all the best.
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we are all struggling in our own way with th delightful (?) ms.
anon - sorry to hear of your own experience as a child.
the thing about replying to a post is that we just want to give a reply and have to gamble that what we write doesn’t offend anyone.
anyway i’m off to have my own struggle (having a shower and getting dressed)
take care
carole x
Life is full of trials and tribulations, good times and not so good times.
As parents, godparents, teachers, whoever comes into contact with children.
Children`s minds are so absorbent and they eagerly ask questions and learn from the older generation.
There has to be a fine balance with how we explain things.
We have to warn them about things like trusting people.
We dont want them thinking everyone is trustworthy, nor do we want them thinking everyone will hurt them.
It`s a very fine balancing act.
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