Hello to anyone who reads this
My Name is Hannah and I have numerous symptoms which for years now I have been concern, that could be Ms which I had to battle my GP to refer me to a neurologist over. I haven’t got an diagnosis as of yet but I have seen an neurologist who said I have optical nerve damage in my right eye and a swelling on my brain?
I’m dew to have a MRI in 2 weeks and waiting for my appointment for a lumbar puncture to come through.
For the last 3 weeks now I’ve been in a lot of pain, and my throat and tongue just haven’t had a rest from numbness/tingling and spasms. which has resulted me in hardly eating and at its worse even being un able to drink. I have a lump that swells up the right side of my jaw under my tongue and a lump that swells on my right side at the back on my neck. I don’t know much about MS (or what it could be) but these seems like points that get attack just before and during a really bad flare up. and surrounding area’s end up getting very inflamed, sore and painful. (happens in other parts of my body too but not always at the same time) at the moment as I type i have it around my right jaw&cheek. back of my head. down parts of my neck and back and shoulders and right collar bone. I also feel like it’s happening deep in my chest. this also is causing me breathing difficulties and I do struggle talking.
My doctor who’s dealing with me is off until Thursday, my mum and aunty dragged me down to the urgent care unit the other day which ended up a waste of time. trying to keep calm and keep anxiety at bay but really struggling with my mental health and I’m at a wits end.
I would be ever so grateful for any support or advice. or just someone to talk to and chat about experiences and coping strategies. I feel so alone. even though I have a wonderful mum who cares. Just someone who might understand what i’m going through would be a god send right now.
thank you for your time.