After a lot of research from a lot of different sources i have discovered that most people with MS take the following supplements.
Vitamin B12, Vitamin D3, and Calcium.
Dosages are individual.
Nobody can give me information on a reliable and safe place to purchase these drugs. There are a lot of dodgy pills out there promising a lot but delivering very little. Placibo supplements are something i do not want spend money on.
Where is the best place to buy these suppements? Can i rely on a brand(there are so many)
After reading a report of some MS research which sounded promising, Im also taking biotin. But I get this from a multivitamin and from a vitamin b complex tablet. Though Ive no idea if I am taking too much biotin or too little. I also take omega 3 suppliment and flaxseed oil which I think includes omega 3 and 6 and I think both are indicated to be useful for reducing MS progression. There again, Im not sure how conclusive any of the research is. I also run to an open window when the sun comes out.
I obtain Vitamin D3 and B12 from Amazon, as below. They are both relatively high doses but, so far, no side effects. I take tablets but some people prefer to use oral sprays.
As Rupert states, an Omega 3 supplement can be obtained through fish oil capsules or by Flaxseed oil. The latter is expensive at about ÂŁ10 for 250mls. Holland & Barrett certainly sell it. It has a pleasant enough flavour.
I take Magnesium as well; it helps with muscular spasms and also has laxative properties, which can be useful.
I am taking vit D supplements in tablet form increasing from 6000ius to 10,000ius as I feel recent research has been showing a Columbian Dr has been treating patients with success on high amounts of vit d 35000ius + in a clinic which seems to have put his patients into remission but of course their being monitored and getting their levels checked regularly. This sounds hopeful but weather this will prove to be true we will no doubt find out in due course.
How long it will take to get to uk is another matter! We can only hope and pray it’s not too long!
I think I may ask my Ms nurse what she thinks.
Im also taking B12 spray and Flaxseed, but I may change that to oil, as the Flaxseed tastes and feels like grit!
If you want to take the high dose biotin, you won’t get it from an over the counter vitamin supplement - join the FB group “Biotin for progressive MS” for information on suppliers, dosage, side effects and benefits. Don’t take 30 vitamin pills a day, the fillers aren’t good for you in that quantity.
I was asking a similar question a few days ago. I’m on Tec and my lymphocyte level has dropped by 30% in 6 months to 1.0.
Anyway my nurse suggested upping my vitamins to combat this.
I currently take 5000 iu of D3 daily, 500 mcg of B12 twice a week and Flaxseed oil about 20ml daily.
I’ve started the OMS programme in Dec. Essentially vegan + seafood, so a healthy diet, exercise that you’re able to do, I do Yoga and meditation. If nothing else it’s improved my constipation.
The flaxseed oil I get is expensive from Flax farms but it’s plainly of a good quality.
Im considering adding Magnesium which is widely reputed to aid spasticity and Calcium, my diet is non dairy.
Generally if your able to predominantly eat a balanced healthy diet most other supplements are imo unnecessary. Certainly there is scant evidence that Multi Vitamins in the High street are any real use.
Although your lymphocyte level has dropped, it is not in the area to get too worried about. In fact I was hovering around 0.5 - 0.62 for 6 months until It dropped below 0.5 when I was told to stop my medication immediately on 22nd December. I dont think taking vitamins probably will have any effect on your lymphocyte levels - it didnt for me - but it may help your body in other ways. I was taking biotin, Vit D, calcium and magnesium before I stared tecfidera and it didnt help, but I didnt expect it to as it’s the potency of the Tec that affects you. I’m now waiting for my neuro appointment on 6th Feb to discuss new treatments but think he wants me to try Aubagio. In the meantime I’m still taking the vitameins and following the OMS diet too.
Join the facebook groups Vitamin D Protocol North America - and High dose Vitamin D for Auto-immune diseases. You will learn so much from these people - who are following Dr Coimbra’s Protocol for Auto-immune diseases - which is very successful.
Read Ana Claudia Domene’s book Multiple Sclerosis and high Vit D. you can get this book or download via amazon-it is excellent.
Magnesium is VERY important to take Malate or Glycinate. lf you need a laxative type then Citrate. Or use the magnesium oil.
The nearest Coimbra trained doctor to us in UK is Dr Michael Cawley- Dublin. He has been trained by Dr Coimbra [top neurologist Brazil] Also Dr Cawley is a nutritionist - and he has MS. You can email him - and he does consultations via skype or whatsapp.
Vitamin d3 needs to be in softgels -oil based. And amazon have Healthy Origins and Nu U vitamin d3 softgels 10.000ius 360.
On the protocol a dairy free diet is advised to keep the calcium levels down. And you need to drink 2.5litres of water daily and each persons amount of vitd/mag/k2/riboflavin etc is judged by their weight - vitd3 levels and blood tests for PTH /calcium. So the heavier you are the more you need.
Thanks Jo. I’ll look into that. Im kind of in dark about doses etc atm. Though Ive given up life time of being a vegetarian and started on cod liver oil too. Followed very quickly by large gulp of tea. Hope you doing ok.