I am a carer for a 55 year old woman with MS and would like some advice.
Background: I have cared for her for 12 years now. She was diagnosed with MS about 20 years ago, I have been with her as the MS progressed.
She is a wheelchair user and is not able to use her arms or legs. She is now recently a peg feed user as she was in and out of hospital after aspirating. She has full mental capacity and is able to talk.
More recently: she is in hospital due to a blocked bowel, she has a lot of trouble with an extended bowel and at home is given Colonic Irrigation to help this.
Now: she is still in hospital as they are looking into her care package. Her care package consists of 24hr care split between three carers (one of them me) and district nurses coming out three times a day to give medication, her feed and three days a week her Colonic Irrigation. Her home is adapted to her needs with hoists in place. In hospital she is not able to have this procedure. She is struggling with her mood as she is happier at home, we are scared this is affecting her mental wellbeing. One hospital even agreed she was better off at home as she gets one to one care. A meeting took place to discuss her care plan but she was not allowed to attend.
I would like help to find out her rights and how she can come out of hospital. Sometimes she will need to go to hospital and she understands that but she doesn’t want to be held there. Is there a way of making sure she only goes into hospital when she needs treatment and then is allowed out when she no longer needs this treatment. Has anyone been in a similar situation?