and I’m sorry for the details… And this is scary long term stuff here so sorry people who are new to MS
mum in law has now had second bout in 12months of fecal vomiting now due to being backed up / blocked.
shes in hospital but been told that there is no room on the referral list for her being seen by the bowel care team (wtf this is not ibs). Dad been told to ring up the hospital everyday to see if the bowel care team have an opening on their referral list. This is not a solution.
we as a family are now being told that having a bag fitted would not help, to high is where it’s needed but being told that would reduce the nutrition she’ll get. Put it low and she will continue to get blocked! So what we do?
all teams want to do the bare minimum i.e. Patch her up and chuck her out. Not actually get to the bottom (pun intended !) of the situation and implement a solution.
Shes not getting the right nutrition as it is. Yes a bag is not dignified but does anyone think manual bowel care for the last 20yrs, having explosive poo as it goes round the twisted bowel / blockage and FV is dignified?
Thanks in advance for all advice