I started Rebif in February this year, got terrible localised reactions with inflammations of 5 – 8cm in diameter on my arms and legs, which have left brown marks, and developed hyperthyroidism as a side-effect. I stopped it 2 weeks ago, started Copaxone last Wednesday and am really struggling.
I live in the Algarve, Portugal, have little understanding of the language and there are very limited resources available. The single MS nurse spent a few minutes in the hospital, training me last week and that was it. She set the needle depth to 6mm and never mentioned changing it at all.
Looking at videos on the Internet, I have seen demonstrations of pinching the skin before injecting, different needle depths for different sites and the mention of manual injections, none of which was mentioned to me. I contacted the Copaxone nurse on Saturday and she said she will see me next week - 10 days time. She told me to change the needle depth to 4mm and not pinch the skin because I told her I was quite petite.
I got excellent phone support from Rebif in the UK, who also sent me literature in English but I can’t find a UK Copaxone support line or website on the Internet and if anyone can give me any details I would really appreciate it.
The Copaxone injections are extremely painful and result in big lumps beneath the skin, bleeding sometimes, and nausea. I am feeling very isolated and totally out of my depth and would appreciate any advice please.