I’m still stressed over this MS diagnosis. When I became unwell I had a day of fuzzy headedness, followed by 2O days of positional vertigo, then VI nerve palsy in both eyes. Then I had pulsating in my left ear which I have never experienced before, then warmth in left ear, felt like something moved in my lefft ear, fullness and pressure in my left ear which I kept opening my mouth to clear. I was having servere anxiety attacks at night and not about my health. I had low blood pressure, a second loss of conciousness in the evening then three episodes of sleep apnea and woke up qcickly in the night feeling nauseus. Then when I began steroids loss of strength in both arms, the list of symptoms went on. I am upset at as I didn’t get to describe many of my symptoms at the time they have just assumed it iwas MS. It was like my nervous system was very stressed and acute for 4 months, I had extreme and through the noof anxiety and not MS anxiety. Clearly loss of conciousness is not MS. I find it upsetting I went through hell and the neurologist have diagnosed it MS. One neurologist said to me MS is not urgent. My illness had urgency and was alot more servere.
I have had what you describe,anxiety levels where i really feel like i am loosing my mind,different to just anxiety,i know the difference as i have had both,i began looking into it, and found that sometimes ms can affect your autonomic system,(google it)
i bet you will find that some of the symptoms are like yours.
Hi thanks will do. But Loss of conciousness and low blood pressure? How can these be MS symptoms?
hi anon
i have had postural hypotension. first i knew of it was when paramedics where kneeling beside me on the kitchen floor!
very dramatic, lots of blood and got taken to hospital in an ambulance!!
it seems to be getting better but i’m still very careful.
at first i was fainting if i turned over in bed!
i dont think its a ms symptom but sure is a coincidence eh?
my lovely gp put me on citalopram when i was going through the diagnosis procedure.
this really helps keep me level.
carole x
Wow Pigpen that is very dramatic.
My loss of conciouness and low blood pressure was when I was having my first and only attack, when the VI nerve palsy was in both eyes, then 5 days after that and after my first MRI and started steroids my body went into phase 2 of the mega attack and symptoms went to my spine. I think my body was stuggling. It seems the neurologists have a problem with understanding it may have not been MS at the time causing this. MS is the most common diagnosis. It seems I had both one sided and both sided symptoms. One sided is typical for MS and ADEM. Both sided i’m still reasearching.
My body has not 100% recoverd from this trumatic illness so I probably do have MS now. So its not an easy diagnosis for the neurologists- so what big deal, thats what they are paid for to work out what went wrong with nervous system. There are many MS mimics on MRI at is is important the neurologists get my diagnisis right as I may need to start treatment. The wrong diagnosis can mean the wrong treatment which can make a patients symptoms worse or bring them on.
Makes me laugh diagnosing me. I said to the neurologist I get tingling in my lower spine and inner thights when I am seated or standing still after a walk, I also get a tingling effect in my lower back sometimes when leaning back in a chair, not heat related. He put in my follow up letter she has tingling in her spine whe she walks, his version would make it seem MS appropriate.
Its a joke… how can fuzzyheadedness, confusion, low blood pressure, ear fullness, ear pressure, warmth in left ear, felt like something moved in left ear, loss on conciousness during my first attack be MS? In know my illness was something more urgent than MS. As MS I understand is not 999. I shouldn’t let it bother me but these neurologists have no guts to think about a different diagnosis.
I also had extreme anxiety saw a psychiatrist who said she’s not depressed just highly anxious. I don’t need to know that. I said to my doctor after wouldn’t u be if your whole right side didn’t work. I didn’t sleep for a month. I too have very low blood pressure. I get palpations a lot, and at the time of my period very dizzy. Which makes me anemic. I’ve never been that before or had spots but do now. I’ve given up working stuff out my body does what it wants when it wants x
Hi Em, I normally have very high blood pressure 125 to 160 over something so low blood pressure is not like me. I’m just annoyed with them , its my nervous system they cannot feel what I wnet through. Now if I say anything they assume its MS related. There is no way loss of conciousness during my first attack is MS related…
The low BP and fainting sounds very much like dysautonomia (which I have). There are tests to confirm this (TTT) and drugs to control it.
The things is I had it only once during my illness, I’ve not had it again, so its not an ongoing thing. I don’t need any drug to control it as I don’t have it now.
There were too many symptoms at the time and I felt not myself which is unlike MS. As people in MS generally do not have a change of mental status during the attack. There were too many temporary symptoms for it to be an MS attack.
I agree with you MrsJ, my brother has dysautomia, and his blood pressure spikes so differently, one minute up and then right down, he also gets terrible anxiety attacks. He is on propanol now to help his anxiety levels. MS can upset the autonomic nervous system.
I agree with you MrsJ, my brother has dysautomia, and his blood pressure spikes so differently, one minute up and then right down, he also gets terrible anxiety attacks. He is on propanol now to help his anxiety levels. MS can upset the autonomic nervous system.
Can I ask you what tests did you have to get your MS diagnosis?
Only a secnd MRI and that was 7 months after my first MRI. No LP.
But in Adem the neurologist is supposed to take a series of mri’s as the symptoms unfold. So If I’d had a seocnd MRI done 3 days after my first MRI it would have showed new lesions which would be part of the first MS attack. The neurologist has thought new lwsions on second MRI 7 months later - diagnosis MS.
Its fine, I think I came to the wrong forum. I have more in common with patients who had ADEM. Theres a third of a chance I will get MS anyway. And with all this stress its not helping and may bring on an MS relapse. I went through hell and I feel cheated as I have now the same diagnosis as someone who didn’t go through hell. What were the all the ear symptoms and fuzziheaded feeling and woke up in the night feeling nauseus… coincidental?.. I don’t expect you to understand as its my nervous system and you didn’t get to feel what i expereinced. Bye and all the best.