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Still Numb...8 weeks and counting

Hi I was recently diagnosed with RRMS after my hands, feet, legs & head went numb & tingly. They still are after 8 weeks. Has anyone else had sensory symptoms that lasted a good while? I don’t feel mine are getting any worse or much better - I have days when all I feel is an internal buzz & I’m dizzy and others where I feel ok. Over the weeks it has been fairly constant. I know I’m new to all this but I thought one of the R’s stood for ‘remitting’! Any advice gratefully received Jane xx

Hi Jane, this can last days, weeks, or even months. Try not to get stressed over it because that will aggravate your symptoms Lynn x

Hi Lynn. Thanks for your reply. Jane xx

Hi Jane, Currently going through a relapse, only 2 weeks so far but my last two were for 4 months and 7 months respectively and have left some damage unfortunately. Hope yours gets better soon.

Hi Fudgey37 Thanks for that - it just gives me more perspective on a possible timescale. Sorry to hear you’re currently going through a relapse - I hope it doesn’t last too long x

Hi Jane, I was diagnosed through sensory symptoms in 2011, mine took abot six months to clear up. I think it’s just luck of the draw! Hopefully yours will start to fade soon. Debs x

I hate to be a stick in the mud but my undersoles, feet & hands all went numb as did part of my scalp and face. The only thing which came back from the year 2000 was my face, all the rest have stayed numb, but one good thing, you can learn to live with it, Ive found ways around the numb hands and feet. I must admit its hard work doing things in the kitchen and I tend to drop things a lot and trip up, however over the years Ive been given a foot up for the right foot and made sure my eyes were always tested, as walking can be affected with numbness & visual issues as we use both sense of touch and sight to keep mobile, hence other ways of doing things.

If you have a good OT, if not get one via neuro they can help with gadgets in the kitchen to make life easier and safer. Also if any part of your daily life is affected ask for help via gp towards OT as theyre used to people with neurological deficits and have lots of ideas to help. Dont stay schtum when there is help out there.

There is no telling if the ‘R’ will kick in, mine does where fatigue is concerned however where sensory issues are concerned not all will remit. Thats the baskit of ms Im afraid.

bren

x

Thank you Debs & Bren. That’s great advice about an OT for me to bear in mind for a future date. I know each person’s ms is different but it really helps hearing from others just so I can start to figure out my own ms journey Xx

Hi Jane,

I have RR MS as well and had a relapse last June which caused numbess and a tight feeling in my left foot, leg and arm. This numbness went on for six weeks after lots of rest and I am only left with a slightly numb left hand which I have got used to. Make sure you get plenty of rest.

Love

Martina xxx

Hi Jane,

I have RR MS as well and had a relapse last June which caused numbess and a tight feeling in my left foot, leg and arm. This numbness went on for six weeks after lots of rest and I am only left with a slightly numb left hand which I have got used to. Make sure you get plenty of rest.

Love

Martina xxx

hi jane

tingling right foot was my first symptom, treated by thiamine (a b vitamin) and it cleared up.

unfortunately it came back soon after and was in botth feet and both hands, hence my dx.

it has never really gone away.

today i can just feel it in the background

its not so bad as symptoms go

good luck

carole x

I had numbness in my leg last year which went away totally after about 4 months. But it came back again last October and I still have it at the moment. I was advised that they wouldn’t treat it as permanant until after a year. But I’ve had steroids a few times since October and no change with my leg so I think the damage is permanant to be honest. :frowning:

My left thumb and first finger have been numb since a sensory relapse in October 2009. The other fingers on that hand are usually a bit tingly but if I am tired or too hot, then they all become numb. I also have a numb patch on my upper left arm. Obviously cooking is a hazard and I now pay close attention after a couple of burns! I invested in a little food processor/chopper as I got fed up chasing onions across the kitchen floor and I buy ready made mashed potato as peeling and chopping potatoes is too time consuming for the same reason.

It has just become the new normal - I don’t even think of it as odd any more.

Tracey x

Hi Jane, I have had numbness twice now, first time it faded over 6 weeks, second time it was more like 18 months but gradually fading over that time, they are still not quite 100% normal but fine.

I’ve just come out of having a relape with balance issues,

But I’ve had a numb feeling now for months its right at bottom of my belly where my pubic bone is, I’m on daily copaxone injections so I generally inject in this area after checking for lumps first as I dont feel it going in anyway, I kept thinking I was numb after my hysterectomy never thought it could be my monster, when if I put it into my thigh, I have to use the ice pack as it strings for about 30 minutes