hi all,
i had an appointment with ophthalmology on Monday to see how much sight has return in my right eye. Well new wasn’t great news and it seem the nerve at the back of my eye is damage and this is why my sight is taking time to return and now they are unsure how much more will come back.
On Wednesday I had my first appointment with neurological consultant who was great and listen to all my symptoms and concerns and told me that it looks like MS because of all the results from all the tests. The next stage for me is to have dye put into my body and another MRI done in August and if that shows inflammation then they want me to look at medications to help reduce the chance of further attacks. Will also be seen by MS nurse not sure what they do but hopefully a point of contact if new symptoms appear.
Still having a lot of issues with pins and needles so there going to look at what I can be give to help reduce this. Just another waiting game.
Anyone had dye into their body for MRI? Don’t know what to expect.
Hello,
I’ve had this twice (most recently on Wednesday). It is not a big deal - just a little injection and you don’t really feel the dye go in. They recommend you drink a reasonable amount of water after the dye just to help it flush through your system.
K
Hello,
I’ve had this twice (most recently on Wednesday). It is not a big deal - just a little injection and you don’t really feel the dye go in. They recommend you drink a reasonable amount of water after the dye just to help it flush through your system.
K
Can I ask what tests you have already had? Is the MRI to see if there is progression I’m in limbo so excuse the questions
take care
Hi
I am the biggest wimp when it comes to needles. I have had the dye during MRI scan and it was fine , so no need to worry about it .
Take Care
Ant
Hello,
My diagnosis started at the end of Feb when I had numb toes and a numb perenium. I was admitted at A&E for an emergency MRI of my lower spine to rule out Cauda equina (a medical emergency when your spinal column pinches your nerves). I didn’t have cauda equina but I did have two “t-2 hyperintensities suggestive of demyelination”. I saw a Neuro who did a couple of reflex tests on me (one of which had an odd result) and was sent for a full MRI (brain, brain stem and full spine) with and without dye. This came back showing lots of lesions throughout, including two on my spine that enhanced with dye showingHello lovely Helen, hope you and John are well? I was just wondering whether you would be free for a wee visit on one of the 20/21/22 June? I have some holiday I need to use up so am taking the week off to generally bumble about and it would be so nice to see you. Happy to drive down to you or meet somewhere in the middle (perhaps Queen Elizabeth Park at Petersfield?) - what ever works for you. Katy xxxx that they were still “active” and inflamed (whereas the others were old and no longer active). This showed both the markers of MS - being dissemination in space (different bits of my nervous system) and dissemination in time (active and old lesions on the same scan). I was then referred to a specialist MS neuro.
My latest scan (3 months after my first) was again full central nervous system with and without contrast - and is intended to act as a comparator to show how the disease has progressed since the last scan - I.e. Are there any new lesions, are there any new currently active lesions, are the ones that were previously enhanced no longer enhancing (suggesting the inflammation/ attack at that spot has ended). Aim is to see whether I can be described as having active MS (which opens the drugs cabinet wider).
Hope that is vaguely helpful? Xx
Ps - so very sorry. On phone on a train home from work and seem to have cut and pasted a text to a friend halfway through the message! Very embarrassing!
Hi,
ive had so many tests from bloods to CT scan, lumber puncher and MRI which was without dye the last time. When I had the attack in January it was only a problem with my eye and now I have pins and needles all over my body but bad in my feet. I also had problems with burning sensation and numbness in my Virginia. I also having problems with following conversations and memory. My last MRI show inflammation and so did my lumber puncher.
wondering if the next MRI will be heard and spine to see if I have any new leisons or still have Imflammation