I can’t believe that 2 years on I’m still here. I recovered from the original event really well over a period of several months, but now I’m not sure if I’m getting slightly worse.
My gp says that I don’t have foot drop as I can lift my foot, but there’s something not right with it as I keep tripping up with that foot at work.
I have excruciating pain in my right thigh, like someone putting an axe in it. My right leg often aches like it’s super tired, when it’s done no more work than my left. Sometimes it feels like my leg is in a vice. Thankfully these pains aren’t constant. They do seem to get worse in the cold though, but my gp says that weather doesn’t affect pain.
I do spin class and my right leg fatigues quickly - thankfully my left is super strong! My right calf muscles also flickers when I peddle super fast. My gp says they are fasciculation but I get them when my muscle is moving. They stop when my muscle is at rest, which seems the opposite of what they are supposed to do.
I also get hideous fatigue some days.
I have no diagnosis, and gp unwilling to refer me back to neuro without anything ‘new’ happening.
I initially tried to see the physio to help with my weakened right leg and foot, but again no go. Neuro physio won’t see me as it might not be neurological related as I have no diagnosis (despite me prescribed amitriptyline by neuro) and normal physio wont see me as it’s probably neurological-related.
So here I am forever more! Isn’t life fun!