It is now some seven months since my diagnosis of PPMS and for some months before and after my diagnosis I was in pain which was sometimes severe and I suffered spasms in my right leg (affected) at night.
I carried on doing my physiotherapy exercises which helped quite a lot in that they prevented me from seizing up altogether. I was prescribed gabapentin and baclofen for the pain. The gabapentin along with Ibuprofen controlled the pain but the baclofen 10mg didn’t seem to do anything at all. On the advice of my consultant I stop taking the baclofen.
About two months ago the severe pain stopped suddenly just like a switch had been turned off. Something for which I am very grateful.
Following advice from kind people on this group I applied for and got my blue badge as well as my disability allowance and carers allowance for my wife. I was also fortunate enough to be able to carry on driving although I had to switch my car for one with a manual gearbox.
Again acting on advice from folks on this group I was able to see a neuro physiotherapist. She gave me more exercises and also an orthotic brace which steadies my right ankle and foot. It does seem to help somewhat and makes me a little more confident when I try to walk. I still suffer stiffness and aching in my right leg and would like to ask if anyone could tell me of any medication which you may have found helpful for this type of discomfort. The Gabapentin and Ibuprofen don’t seem to help.
I have started taking a vitamin D supplement and have also seen BIOTIN supplement receiving good write-up for helping with PPMS. Anyone able to recommend or advise on taking this supplement too please?
Every Best wish to all of you and thank you once again.