I wonder if you can help?
It’s 11 months since I was diagnosed with PPMS and it’s been a learning curve. This January I found that I was getting really stiff and my back just ached all the time and when I contacted the MS nurse she said it was MS Spasticity and recommended Baclofen. She sent me a letter (GP as well) and for me to go to the GP and get a prescription. Well I googled Baclofen and got a bit scared and just didn’t go to the GP instead I upped the intake of paracetamol and ibuprofen and thought it will get better when the temperature warms up.
I was in clinic last Thursday and I was as stiff as a board, the MS nurse was a bit annoyed that I hadn’t taken her recommendation for the Baclofen.
I was always so healthy I never got ill not even a head ache so never took medication on a regular basis, even taking the paracetamol and ibuprofen regularly is alien to me.
I am going to try the Baclofen. What I want to know is, what affect will it have on me? The MS nurse said I could try a very low dose to start (she mentioned 5mg to start) and then up it if need be and I’d be taking it 3 times a day.
I was afraid that it would impair my ability to drive, that I wouldn’t be safe.
Would it send me to sleep at odd times of the day, would I be more prone to falling over.
Would I have to give up on alcohol, not that I drink that much but I do like the occasional glass of wine (maybe 2) and a half of larger now and then and when I go on holiday.
Can people tell me what they thought of taking the Baclofen and if they felt it worked for them and what to expect. I know everyone is different and things sometimes don’t work.
Thank you Linda