Hi Everyone, Not posted for ages but do keep brownsing. I had 3 months off any symptoms saw my neuro said everything great so he said it was all probably a one off event (think he forgot about the optic neuritis last year!) sent me away for 6 months…10 days later wham bam everything back and worse…he was great saw me within a month and said I had relapsing myelitis (90% sure M.S but cant see multiple lesions on MRI) and set me off for a 3/7 course of steroids. Feeling much better not perfect but better. How long does the steroid effect last for and is it normal not to feel 100% better. it still feel like I have dipped my foot in scalding water and I have no exercise tolerance. Jerking is less but still there. I am now waiting for anLP as the MRI’s havent been conclusive enough. Just as a foot note …hot weather made my symptoms horrendous I am a sun worshipper so bahhh to feeling crap when its hot!!!
Much love everyone