Sunday morning found myself carted off to hospital with very high BP and a UTI that would not shift.
Long story turned out after an ECG and a blood test i had at some point a heart attack so still here undertaking tests. The reason I am writing this is I am horrified at the shear lack of knowledge of people with MS by some of the nurses I met in accident and emergency department.
Asking for a commode as i was desperate for a pee, can you not stand on your own. No i have to hold on to something, oh so you cant do it yourself I cant help you i cant hold you, you will have to have a bed pan. I told her i cant as i cannot use one, as i have water retention and i need to rock forward. why she said well you can imagine the conversation. Eventually i had a new nurse i asked for commode she got me one and between us we were like a machine i told her my right leg was strong i could use it to stand if she could make sure i was able to swivel to left and get on it worked and done safely. But two nurses in my time in A&e FLATLY refused to help me with the commode.
when i did try and pee in the bed pan i had to hold on to the bed rail they are high up. whilst doing so it collapsed and i went tumbling to the floor and now bear the bruises.
when i was talking to one who did help she had no idea that sometimes you cant feel we have peed. so when i asked her have i done anything she didnt realise that.
The attitude to me by some was appalling as though i was making it all up. i left A&E feeling very deflated.
in the ward some have an idea but many dont. they think if you can stand on one leg you can walk to the toilet. it doesnt work that way. at home i use a rollator as to try and walk safely without is not possible.
A ward like cardiology didnt even have a WALKING FRAME. NOPE. SO FOR several days i am more and more bed bound and getting weaker as i am not doing my normal walking. i could try with a stick but my left side since the attack on sunday has made me so much weaker. i am worried i will fall.
I think staff should all be trained in different areas of disability. all wards should have access to standard equipment like a walking aid. there is another lady opposite me who needs one.
i have kept away from covid for 2 years, i have come in here and now my ward is being isolated as one patient who has been here 7 days tested positive. So now until i have so many days clear tests I cant finish my tests.
Mind you one good thing has come of this as one nurse is lovely and i have been teaching her all about our specific needs and she had no idea how MS AFFECTED US, so i at least have managed to changed someone who hopefullly will be able to pass on her new knowledge to colleagues.
TAKE CARE what an adventure i have been on. lol. Lets hope i dont develop the dreaded covid i have enough to put up with including a UTI which is still not fully gone yet lol.