Just been discharged after the worst week in hospital ever. Woke up last Monday feeling terrible with a fever, awful headache and the worst spasms I’ve ever experienced. Managed to drive to work but ended up being sent home. 2 hrs later I couldn’t stand or push myself off the sofa to get to my mobile (home alone) so ended up called NHS direct from the house phone who sent an ambulance. Good treatment in A&E and admissions ward but all Neuro wards were full so got shoved onto Diabetes / Short stay medical ward where the next youngest lady was 73!
Ward staff were awful. I’ve never ever had a bad thing to say about hospital staff before so please don’t judge me as a serial complainer. Health care assistants were rude and uncaring. Nurses (bar 2 lovely newly qualified ones) were jaded didn’t seem bothered. Doctors were few and far between.
They discovered a UTI and started me on IV antibiotics which was fair enough but insisted that Codeine should be sufficient to treat my spasms. My consultant went on maternity leave last week so they couldn;t ask her so I suggested that I needed Baclofen again. The doctor said she wanted to ask Neuro reg or MS Nurse - fine I say. Every day I asked them if they had spoken to MS nurse, every day the F1 doctor said “Its just an answer machine”. She hadn’t left a msg and I told her that if you listen to the answer machine message that it asks you to leave a message. In frustration I phoned myself and left a message.
Apparently the MS Nurse contacted the Doc but they told her I was no longer having spasms? (News to me)
I mentioned my double vision to them every day - doctor said Oh dear perhaps that will settle on its own.
I was also having difficulty swallowing and speaking. I struggled to eat for 6 days until having a SALT assessment about 4pm on Friday. I had barely managed any food yet the nursing staff recorded that I’d eaten full meals. Apparently I ate Roast Potatoes, Chicken and veg even though I have given up meat for Lent!
I was left on the bed for an hour when I’d asked to be taken to the toilet and then wet myself and was scolded for it. I was left in the bathroom in excess of 30 mins on numerous occasions even though I could hear staff chatting just outside the door about their personal lives.
Another patient regularly had food left on her table by kitchen staff ready for nursing staff to feed her, and staff would come to collect the bowl an hour later and say “Oh she’s not eaten much” “Oh just put that she ate half a bowl” Poor lady couldn’t even reach her table let alone hold a spoon.
I discharged myself in disgust and was eventually given Baclofen at a tiny amount of 5mg bid. My discharge note could’ve been written about anyone but me. Didn;t mention my double vision, SAL issues, pain or really much of what had happened. Doc noted that I seemed depressed (who knew!) and that she would recommend monitoring of my mood by GP in my discharge letter… Was it mentioned? Nope -course not.
I’m so sorry if I have caused offence or broken rules by this massive vent. Dare not tell family how awful it really was. Am feeling really down, symptoms have not resolved, can’t get a GP appointment til thursday (unless I phone tomorrow to check for a cancellation). Seeing physio tomorrow and don’t want to burden all this on her. Not sure what to do/ if I should complain/or what to do