I am so very very upset. I am a pt at the Walton Centre. I have been having some real problems for 12 weeks. I phoned the nurses on numerous occasions and never got a response. I went to the GP and they told me to go to the Walton Centre! So i have been suffering without any help. After 5 phone calls the nurses finally answered and told me that constant nausea is not as MS problem and neither are restless legs, not sleeping and the extreme fatigue i am experiancing because of all of the above. I went back to the GP and they said its an MS problem and to speak to the MS nurses! I then started witht he MS hug and phoned the nurses again. I didnt get any answer and this was 12 weeks from when i first started with such problems. So i sent the nurse an email. I was not rude, i explained frankly that i was suffering and noone was helping me and that i needed to be seen. I bullet pointed my problems, how i was feeling and how much i needed some help.
She emailed me back - well actually, she didnt write anything. She forwarded me a CC email that she sent to my consultant saying “i got this email from Lyndsey and i do not like her tone. I have done nothing but be supportive and helpful with lyndsey. What shall we do about her”.
I was so angry and upset. It affected my MS, i cried all day and have been in bed all day today. Im so deflated. No one is helping me and i dont know what to do. I am sick of fighting people. I am currently fighting my uni with a disability discrimination case, i fighting the benefits system who want me to go back to work, i am fighting the GP’s to get help and now the nurses and doctors who profess to be there for us DAY AND NIGHT when they have their lovely open days. They havent even got back to me to discuss my symptoms.
Lets just say my email was rude and she didnt like my tone - should that stop a nurse from seeing me and a consultant from making an appt for me :(. I am lost x x x x