I hope you are all well.
I had an appointment this morning with the neurologist who diagnosed me 15 months ago. The day I was diagnosed I was told I had MS and was sent on my way with no explanation on the illness I was only told that an MS Nurse would be in touch. There was no MS Nurse as the one that covers the area doesnt cover the village where I live. I ended up speaking the neuros sec who gave me the MS nurses number who pointed my in the right direction. I had to chase my old doctors who did nothing then I ended up finding the local MS Nurse myself and telling my doctor where to refer me. Because of where my Nurse was I was seen by another Neuro at another local hospital.
The new neuro and my nurse have been fab and have noticed that my health had declined and sent me for another MRI and found that I had more lesions. Not massively but enough for me to be reffered to have DMDs.
Anyway so a few months ago I had a letter come through to see the neuro who had told me I had MS and the appointment was today. I was called through to my appointment and I have never been spoken to like that in my life because I didnt know exactly what you class as a relapse. The neuro was asking why the new neuro had sent me for an MRI and said she didnt think I needed DMDs baring in mind she has seen me for 15 months and obviously hadnt read through any of my notes. She made me feel like I was wasting money if I had DMDs saying that each person who has DMDs costs the NHS £10,000 a year. It all ended in a bit of an argument and she said she wouldnt be seeing me again. Which is fine by me as she is an absolute cow bag!!
Sorry to have a rant but this has really upset me and I wondered if anyone else has been treated like this.