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Starting Gabapentin - Opinions Wanted

Hello all, new to posting so please be patient :slight_smile: My partner has recently received her diagnosis and been prescribed Gabepentin as well as being put on the Mavenclad wait list. She’s very wary of the Gabepentin however and is reluctant to start on it due to all of the side effects. Could I ask that people share their experiences of the drug both good and bad as it’s ok reading the info sheets but first had experiences are always better. She’s experiencing a lot of pain, shocks, hugs and aches at the moment and I would love to be able to help find some way of just helping her feel even a little better. Thanks for your time in advance. Marc

Marc,

I am sorry to hear about your partner’s diagnosis. It’s a difficult time for both of you.

Gabapentin works for many people but there are issues with side effects such as sleepiness and weight gain; these were the main issues for me. I cannot offer any comment on the effects of Mavenclad as I have not used it.

For neuropathic pain I would suggest that your partner considers using a CBD product such as paste or oil. A high concentration of cannabidiol is required to be effective against neuropathic pain but it is certainly works for me. It also has the added advantage of improving wellbeing and sleep patterns.

I have been using CBD paste for over a year now and I was able to wean myself off Gabapentin. At least give it some serious thought, as it is a natural product with no side effects. I use the 16.4% paste from CBD Brothers.

In addition I recommend you both look at the Overcoming MS website and obtain the free book. The book includes useful information about diet and the website has many recipes and videos of exercises that may help.

Magnesium can help with any spasms and many neurologists recommend taking a high dosage of Vitamin D, such as 5000iu. I would recommend that your partner speaks to her GP or neurologist about Vitamin D dosage before starting it, however.

If you have any questions about CBD please ask me.

Best wishes

Alun

hiya marc

i recently took this drug but couldnt tolerate it. i persevered for 2 1/2 weeks during which i had the runs and it did nothing at all for my pain.

now amytriptyline which i take twice a day with some effect.

hope u find something that helps and she can tolerate.

ellie

Hi I have been on this for 16 years and take 1200 mg a day. I have had no adverse reaction at all.it dampens the pain but does not take it away. Paul

Thank you all for your replies. We’re going to see if the CBD suggested works before starting the Gabapentin. The very kind chaps at C B brothers are sending us a Blue and White sample set to try so fingers crossed.

Hi Marc, I take it when my tremor gets bad and I really feel like things aren’t working. I take more at the moment after a bad winter, it does work for me and takes the edge off the symptoms. It makes me a bit fuzzy so I don’t take it every day, if I am busy which is rare or driving, I don’t take it the night before as it sort of makes me feel like I have a bit of a fuzzy hangover without the fun. It does seem to make me sleep really well. I moderate my food if I have to up my dose to keep my weight down and I have found that if I don’t take it all the time and only when I really need it, it doesn’t affect my waistline, if I take it continually my leggins get super-tight!! My specialist nurse and GP are clear that I need it and will take it, so with this I do as they have been right about everything else.

It didnt really do anything for me, in respects to MS symptoms I was then put on Pregabalin, which apparently is very similar, but again nothing nothing dramatic to report with the MS symptoms. However I did feel that both meds pushed my weight up a little bit.

both gabapentin and pregablin made me bloat up like a pregnant hippo!

then constipation to the point where it made me cry.

i came off them both.

tbh i felt exactly the same as before minus the bloating.

the pain levels were the same as before i had ever taken them.

i decided that it must be a part of my life now.

not good but pregnant hippo was worse!

yeah, I can agree. I didnt notice any difference in my physical symptoms.

Both gabapentin and pregabalin I found dreadful. Terrible dizziness and mood swings. If there’s an alternative I would go with that x

I haven’t had any side effects at all. It does what it’s supposed to do, I think it’s great!