Hi,
I’m still awaiting blood tests results & probably further tests but I’ve small lesions on my brain and some on my spine , so a chance I will be diagnosed with MS.
In the meantime I’ve already been diagnosed with a vitamin B12 deficiency and will start a monthly B12 injection on Wednesday.
I wondered if the B12 injections are effective, how soon would I feel the effects?
I’m hoping I “just” have a B12 deficiency while the jury is still out ….
My symptom so far are tingling/burning (not painful but annoying) in lower left leg , occasionally on the right too , slight urinal issues but nothing crazy yet, on off lower back pain, and since this September Lhermitte’s Sign - I’ve had my tingling / burning sensations in my feet since 2014, so if it is MS I hope it continues to go slow
Thanks
When people present with strange neurological trouble, B12 deficiency is something they test for routinely. And for many of us with MS, me included, B12 deficiency was tested for and confirmed, but unfortunately it wasn’t the only thing that was going on and MS turned out to be the main culprit. I think this is quite common. The proportion of people with MS who have B12 deficiency is quite high, as I understand it, but what I don’t know is whether this is just because people with neurological trouble are the only ones to find out they’re deficient in B12! I must admit that the three monthly injections don’t make a lot of difference to me personally, but I’ve heard some people say that they really feel a difference. But B12 deficiency is a thing in itself, as you say, and I very much hope that this is what lies at the heart of your trouble. That would be a very good outcome.
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Thank you Alison.
How did they test / find your B12 deficiency ? Was it a blood test or LP ?
Blood test by the GP. Having diagnosed the deficiency, she then did further blood tests exclude pernicious anaemia, which I didn’t have: just garden-variety B12 deficiency with no obvious underlying cause.
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Thanks for your replies
Hope you are keeping well yourself?
Such a crazy few months for me with this , it’s scary but I’m trying to keep my head up - I’ll have my next neuro appt on Monday next week, where hopefully he will have more of an idea.
I think he leans towards me having MS as I’ve lesions in both brain and spine. He seems to think my prognosis is good though given he examined my physically and due to my first symptoms being in 2014 - am I right to be sceptical of his optimism? I’m going to get a second opinion eventually but I’m hoping I can trust his judgment !
Thanks again
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