Hi all,
I after several months got my appointment to discuss implications of bass being g found in my CSF fluid. I am not sure if others have similar symptoms but my young feels huge, having problems with words and swallowing . Is this normal in MS? Haw others had thi how did they cope ? I hae ills go but they did. Or do anything all waiting on neurological dr input . But honestly afterwards of wait g and these last fees weeks are scaring me.. advise welcome . I tried to get a SALT referral but has to come form the de
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Hi, I’m really sorry you’re going through this—it’s completely understandable to feel scared while waiting for answers.
The finding in your CSF (likely oligoclonal bands) can be linked with Multiple Sclerosis, but it’s not a diagnosis on its own. Symptoms like speech and swallowing difficulties can happen in MS, but they should be checked promptly.
You’re right to ask for a **Speech and Language Therapy referral—this is important for swallowing support. I’d recommend contacting your GP urgently to speed this up or escalate your neurology review.
In the meantime, stick to soft foods, eat slowly, and sit upright. If swallowing worsens, seek urgent care.
You’re not alone in this—hope you get answers very soon
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Thank you. Finally had official diagnosis today. Mentioned about the swllow and he did not do or say anything. I feel that he did not take me seriously at all, spoke in baby talk to tell me about how nerves work. Am a nurse so I was like thinking get to the point. I just thought some one might if checked for risks today . This reinforce that I am manifesting this stuff and speech and swallow is irrelevant with why I have. He did go on and on listing every single drug. After a while I just heard bla bla bla bla bal . A mess right now feel violated and stupid and exposed. Worst of all judged . So sorry main over. But you message was lovely