lts the bladder constantly spasming that caused my incontinence. Quite different from stress incontinance - where laughing and coughing sneezing - jumping running [l wish] caused ‘leakage’. The bladder is one large muscle - and when it spasms it is downright painful. And as Poll says - it hurts in the lady bits as well. l also get awful cramping pain in the butt as well.
Even with a SPC - if l get a bad cough it can cause damp drawers. This is the difference between ‘urge’ and ‘stress’ incontinance. l never got on with oxybutinin - couldn’t stand the dry mouth - it use to make me gag when l wanted to talk. Tried Detrusitol - and that was nearly as bad. l know there are other meds - vesicaire for one. lt seems when you try to cure one symptom you get five more.
LDN certainly helps me - and the Sativex spray.
Has anyone had success with any other med? l can remember telling my urologist - that before he prescribed oxybutinin to any patient - he should try taking it himself. [ But the poor fellow died suddenly from a heart attack before he was 50 - more to do with his serial divorce habit - married three times -divorced twice and ‘cheating’ again with yet another nurse - he took playing doctors and nurses a bit too far].
Be interesting to see how Botox will help. At least with a SPC in place you would not need to self-cath - which is what
you need to do with botox injected bladder. Poll your ‘condition’ certainly ties in with MS. Perhaps all auto-immune diseases have similar/same symptoms.
These are all ‘personal’ problems - and so many of us suffer with them. But we all think it is happening to only ourselves.
At least we can air our problems on here - knowing that we are understood. And hopefully, our problems will help others cope with theirs.