I have had SPMS for some 15 years, with the main problem being mobility, with occasional (usually) night-time spasms (big toes bending upwards, nearly always right foot) whilst this used to be more annoying than anything else, it has got worse over the last few weeks and can last for over 3 hours at a time. It is now having a devastating impact on my routine, and I would love to hear any tips or advice from members on coping techniques.
Curiously, the spasms only seem to start when I am relaxing- after work or when in bed; am I missing something?- could there be a practical solution ?
I currently take up to 8 Baclofen daily, which no longer seem to be effective , and am currently on a trial for Sativex- but this does not seem to touch an aggressive episode like last night, even a Diazepam on top didn’t help
I have tried Gabapentin but had a bad reaction, and although usually effective, I don’t want to become reliant on Diazepam.
Any help massively appreciated.