Hi everyone!!
Some of you already know me and we have talked a lot in previous posts!
Well I recieved a called from my neuro and told me my MRI (brain, and cervical) was CLEAR!!
So I am really surprised as the first neuro who saw me really thought I had MS so I gave the MS diagnosis for granted (my age 29, my symptoms etc)
So reality twisted and now I’ve been told I have a lesion or some kind of desviation in cervical area… But it does not seem MS.
The literal words told me by neuro were ‘olvidate de la esclerosis múltiple’ “forget about MS”
She told me a new MRI Will be done to me Next year…
So… These needles, these sensation of tingling since april on many parts of my body (especially feet at night) where do they come from??? Tobacco? Sedentarism? Bad diet??
I am really lost at this point @Ssssue my brain showed NOTHING and my cervical area something not related by radiologist to MS…
I cant know explain my neuritis last summer, as NOTHING appeared in my optic nerves…
What can it be???
May It be neuropathy of my peripheric system??
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Oh my god Sergio.
Amazing news. So much for DMDs, HSCT, etc, etc…
It’s pretty much as everyone was saying at the start, we are all different. MS type symptoms don’t always add up to MS.
It’s weird, but because you were so certain, had the right signals from your doctors and it sounded right, that we just treated it as being confirmed MS. Which it’s not. Normally, most of the old timers on here would have carried on telling you ‘it might not be MS’.
Have you had your vitamin levels checked? B12 deficiency could lead to nerve tingling type sensations. Have a look at Vitamin B12 or folate deficiency anaemia - Symptoms - NHS (I know it’s the NHS, but we used to be in the EU!)
I’m most definitely not saying it is that or might be that or even that you should get B12 checked - just that there are so many different diagnoses which share symptoms with MS. B12 deficiency is just one of hundreds.
I imagine the lesion in your spine is not showing that it’s caused by ‘demyelination’. That’s why she can so definitely say it’s not MS.
I can’t even begin to start on what else it could be. As I said, there are just too many possibilities. I don’t think you should be too worried right now either. Just celebrate with your Sergio, phone your parents and give them the good news, have a wonderful weekend without MS and then next week think about cleaning up your diet etc. And maybe then thinking about what is causing the problems. Just stay away from Google, don’t trust know nothing amateurs (like me/us) and try not to worry.
Come back here when you know what is causing your symptoms and let us know. You may not have MS, but you kind of feel like one of the family now! Jeje!
Sue x
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WOW! Wonderful news to get. Now they know what it is not, they might get to know what it is. But for this news, fantastic and have a good, restful weekend 
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Hiii mi amiga!!
Yes my lesion in cervical area must be not related to MS as she would have put me under more tests like lumbar puncture.
So, are there so many conditions which share symptoms with MS???
It’s strange! I did not Hope for those News!
Maybe its something wrong with my spine as I always had lumbar pain and cervical pain … Since childhood.
There are many symptoms that are associated with so many illnesses! Sometimes the Neurologist needs to cancel out to get to the real cause - if you don’t have MS great. I can understand your worry - when they couldn’t give me a diagnosis I thought I was going mad, I thought they didn’t believe me and then, eventually, I got the diagnosis. Hopefully the will offer more tests and get to the diagnosis and treatment that is correct
Do you have MS??? What happened to you? Why didnt you get a diagnosis at first??
@Charlie_Mac
Congratulations, Sergio! This is great news, and I hope they figure out what’s going on soon. But please don’t abandon us! We’re still coming to your wedding!
Ohh jeje of course!!
NOTHING can pay the support you all have given to me with every single word.
@SpanishSergio yes I do, Diagnosed 1997. In 1990 my feet and left side of my body felt numb but still worked. GP referred me to Neurologist who told me it ‘could MS or nothing at all. Things started about 5 years later when I would run across the street - my legs felt like they were hinged at the knee. Then I was in a class and my fingers went into cramp I couldn’t lift my pen. We didn’t know what was happening - I was a nurse and my partner a GP. So we took blood, assessed reflexes and did pin prick tests - there was nothing abnormal found. A year later I went blind in the right eye - I was going to the Eurovision Song Contest but couldn’t see properly so didn’t go - now every time I watch the video I see my empty seat, front row and am reminded every time. I went to the optician and then the Eye Hospital and eventually went into hospital where I got an MRI and Lumber Puncture and then diagnosis.
I don’t know anything about your symptoms, and wouldn’t want to, but your symptoms could be something related to diet, fluids, chemical imbalance. Your Doctor will have carefully looked at your symptoms and having discounted MS will be working towards something which offers a more likely explanation for your symptoms before offering treatment. So, again your news was good to hear.
Hey!! So you didnt get a MRI at first??
How you doing now with your MS?? How was your journey with MS?
My symptoms are tingling in my feet especially at night when I’m in my bed… And some tiredness in my legs …
Its quite weird as my tingling sensation goes away when I move my legs …
For instance, I feel tingling at my feet, I get frustrated by that , then I stand Up and the sensation goes away slowly.
My neuro said I have to forget MS as no lessions related to MS have been seen in my MRI… Only one in my cervical area which does not fit to MS.
I Will have another MRI Next year (I Guess its typical in these cases)
No, my Neurologist didn’t think it necessary at the beginning - I was healthy, working without time off. I’m slowing down (if your world doesn’t fit alter it) - I had to leave nursing and this year gave up being a Councillor after 18ears. I have used a wheelchair for 10yrs, still drive and still in a 32 year relationship. Now I’ unemployed, do volunteer work for a Charity and getting as much out of life that I can.
Hi such good news i did actually think you had confirmed MS.
Yes there are many conditions that have similar symptoms.
One is LYMES disease off ticks. Lymes actually is in epidemic form in a lot of countries. The problem is many dont even know they have been bitten by a tick. Can even start with eye issues. Even Lupus can have similar.
I think for the sake of sanity perhaps you just enjoy your life with your gorgeous man and wait until you have the next test. Check your vitimin D levels, magnesium and B12. Also check your hormone levels you could have an issue there which believe it or not can throw your system out of whack. (sistema fuera de control).
Its wonderful news, onwards and upwards as the saying goes.
Great news.
Keep well.
Jen