So unfair

Hi all

Hope you are all doing as good as you can in this heat.

The last few weeks nerve pain has been horrid, I suppose the heat has added to it, as a lot of us find it bad. Although I take amitriptyline, I don’t seem to tolerate an increase, and got really fed up with the pain (well P****D off if I speak the truth).

Saturday I decided to ask the pharmacist what the cost of a private prescription of stairs would cost…wait for it…£562 for one!!! He was as shocked as me.

I don’t understand how come it’s available on prescription in Wales but not in England. This is supposed to be the United Kingdom…doesn’t sound very United to me.

Anyway after feeling angry, I have calmed down now …just wish the nerve pain would.

Pam x

**should say sativex not stairs!!

Pam x

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The Canbex trial might be worth keeping an eye on, although initially they are only looking at spacticity.

http://multiple-sclerosis-research.blogspot.com/2016/04/canbex-leaves-london.html

I hope you find some relief soon.

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Thanks Whammel, also for the link

Pam x

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Try Canabidol. 10 gel tablets £22.00.

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Update… Spoken to the Doc and because I have been on Warfarin for 35 years, both Sativex and CBT hemp are a definite no no, as they would interfere with my clotting, even though he appreciates nerve pain is awful…so plan B

Plan B is either try gabapentin alongside amitriptyline, or increase the ami by half a tablet every 10 days, so I have opted for the latter to see how it goes.

Heavy showers here today, so watching the footy on tv…so not all bad,

Pam x

Pam I have recently changed from Gabapentin to Duloxetine for nerve pain…I find it excellent, Gabapentin was no longer helping me. I wonder if it would be worth speaking to your GP about trying that…like Amytryptaline it has anti depressant properties too.

In the meantime hope the extra Amytryptaline helps,

Take care,

Nina x

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My neuro rehab Dr gives me Nabilone, he’s happy to do so on the basis it really helps me and it’s cheap as chips It’s a man-made cannabanoid and it’s normal use in England is to help with nausea after chemo. Its legit for MS in Scotland. Might be worth seeing if you can try it, you’d need o find a doctor that was happy to prescribe ‘off-licence’. I tried the Charlotte’s web hemp oil, it was ok but too costly. I’d also like to get Sativex.

Sonia x

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