Hi, I was diagnosed in 2004 but in the past few years my symptoms have got a lot worse. Virtually housebound. I hate my life and constantly think about what I have had to give up. Why me? I am a good guy and don’t deserve this.
1 Like
None of us do…it’s a bitch, it really is. But I try my best to stay positive, stay up there, not only for me, but for my hubby…come on, chin up.
Jean x
So sorry to hear that you feel like this. Not much I can say to you other than I hear you.
Please ask for help from friends family or any organisation out there. You are not alone please know that you are heard.
Im so sorry you feel like this. Taking helps 
what do you think you could do at home to make you feel better? Do you read books? Puzzles?
Hello @tony
Sorry to hear your feeling so down, at the moment.
I was initially dx in 2001.
I’ve been housebound since last year.
Yes, I too miss life before this rotten disease took a tighter grip.
I just try to think positive nowadays, that’s all I can do tbh.
I wish you all the best,
JP
1 Like
It’s tough when it feels like all the good stuff was in the (now) half-empty part of the glass. I am sorry that life is looking so bleak.
I know this advice may not be useful for you but…
Everyday good people die in car crash, other receive a diagnosis of cancer, even some children do… Another people are killed with no reason…
I mean, Life is not fair… Nobody deserve bad things (some do) but this is the Life…
Hope you get well in the future
All my LOVE from Spain.
X
1 Like
Hiya Tony
I so could have written your post myself! As the other replies have said life with ms is a challenge, painful and frustrating.
It’s a matter of picking yourself up and not dwelling on what you can’t do. These days you can get shopping delivered from most supermarkets, meals delivered and I’ve used the Tesco’s Whoosh delivery - your order comes within 30 minutes! Oh and Amazon are amazing!
It’s fun to plan your meals, order the food and enjoy preparing and eating. Some days I can’t manage much but hey such is life!
I also play go-scrabble and monopoly which are on free apps. I’ve had MS for 31 years now - more than half my life - am throughly fed up with it but I need to keep going!
Sent with love and a big hug
Sue xx
2 Likes
Hi Tony .
A very warm welcome to a site where everybody is so very helpful whenever you need so always reach out.
I totally understand feeling as you do but please know people are always ready to listen
I miss the ‘old me’ but have kinda adapted as best I can.
Take care
Maryx
Hi Tony,
I’m not diagnosed yet myself but have other health issues which have robbed me of my former life. Just wanted to reach out and say you’re not alone and please keep posting as Sometimes just having an outlet to those who understand helps to feel like you’re not suffering alone.
I had some CBT therapy for acceptance of illness which I found helpful so might be worth asking your MS nurse if anything is on offer. It was kind of like going through a grieving process of your former life/ what you hoped your life would be like. Overall it has helped me to focus on what are the current positive things in my life & what I can achieve rather than the what could have been. If not through your nurse, then you can try your gp. Take care,
Penny
1 Like