Smoking

Hi everyone,

Just wondered if anyone had any advice/opinions about smoking. When i was diagnosed I managed to quit cold turkey my 20 a day habit but sadly it is suddenly creeping back. I seem to struggle when it comes to alcohol where I just can’t have the will power to drink and not smoke but this morning I did have a cigarette without a drink in hand and now I’m worried I’m going to go back to old habits.

My job is in the music industry so i am surrounded by alcohol and smokers which does not help. I was just wondering if anyone had any words of advice how they have managed with smoking or how badly it has affected their MS?

Any thoughts would be really appreciated!!

Thanks x

If I had to told myself I was giving up for good, I wouldn’t have lasted the hour. I just decided not to have the next one and kept on just not having the next one. It has been about 12 years now, I think and I haven’t had the next one yet.

That’s tough, being in an industry where smoking is routine. But it isn’t easy whatever your circumstances, as you know. There’s always an excuse to do the thing you want to do and shouldn’t: to be sociable, to calm the nerves, to celebrate, to soothe - there’s always something, isn’t there? I started smoking more once I was dx - well, I deserved a consolation prize, didn’t I? :slight_smile: Crumbs, the stories we tell ourselves!

It’s tough, I know. But there is nothing you can do that is better for your health than ditching the fags, and people with MS need all the help we can get on that one.

Good luck.

Alison

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Hi smurphy

Here’s my rather long, rambling story about smoking. ​

I used to smoke, more than is good for a person. Way back when I was first diagnosed and for several years after, I worked in London, smoked and drank to excess, often having 20 fags and a bottle of red wine instead of dinner.

I am not, by the way, endorsing this kind of lifestyle; but it was good fun at the time.

I gradually had more relapses and became more disabled, and some would say, became more civilised, or at least, tamer (domesticated!). I moved out of London, worked from home for a couple of years and eventually had to stop work because of disability. At this time, I was using a crutch and driving an adapted car, but could still walk.

At one time, my OH came with me to a neurology appointment and asked the neuro whether my smoking was affecting my MS. The neuro at that time (about 2004), said he didn’t think it did. I believe generally nowadays however, most neurologists think smoking is more harmful for the MSer than for someone without MS.

I eventually decided to stop smoking. I thought it was better to stop while it was my decision rather than one made for me, either because I couldn’t afford to smoke any more, or because my disability had worsened, making smoking outside the house much harder. And of course my OH disapproves of smoking so I always did smoke outside (or in the shed on really bad weather days!)

So I stopped. It wasn’t easy, but I decided in Spring of 2011 that while I knew I’d never give up through the Summer, my quitting day would be the day the clocks went back in October. So all through the summer I happily puffed away, but in Spetember I started cutting down. By October I was down to about 6 or 7 a day, by the last day I smoked one.

Then the following February (2012) I had a real humdinger of a relapse, I was completely numb from the waist down, couldn’t move a single toe. I was in hospital for 2 weeks, then a rehab unit for another 6. So of course, I couldn’t have smoked, it would’ve been forced on me.

I consider there’s two ways of looking at this: the most likely supposition is that it’s just as well I’d given up before being forced to. But the small evil little devil that resides in me suggests that it was the giving up that was the cause of the dreadful relapse. I know this is probably not true, but the thought still lingers, 4 years later. By the way, I did have some remission from the relapse, but I still can’t walk.

So, obviously not smoking is better for you and your health in so many ways. And it’s certainly likely that giving up is better for your MS. But I would never condemn a person for smoking. Working in your industry, I probably would never have been able to give up. As it was I think I was virtually the last person I knew who still smoked. And I still rather like to hover around a smoker and inhale a little second hand smoke.

Sue

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i always found it most useful to regard myself with absolute disgust and as an absolute pussy, whenever i felt i might succumb to the temptation to smoke a fag.

i know it is bad for me. i know it holds limited appeal. i know it is a waste of money. i know there is no reasonable, valid reason to actually puff away on tobacco. to do it anyway, would be an admission of being a weak willed idiot. and frankly, i thought more highly of myself.

an alternative strategy however, could me to smoke only spliffs! many of the detrimental aspects of smoking listed above, are invalidated, especially when suffering pain and spasticity derived from the always generous MS condition.

good luck.

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You know Paolo, one of the most reasonable arguments for legalising cannabis (in my opinion) is that it’s not harmful, and yet tobacco, which is mostly decidedly bad for health is legal. And that’s regardless of the fact that I’m a former tobacco smoker and never been bothered about smoking or otherwise imbibing cannabis!

Sue

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It is so frustrating for someone like myself, who has personally witnessed (not experienced) the medicinal benefits of ‘weed’, to hear of so many MS sufferers being prohibited from enjoying its benefits.

A friend of mine’s brother had to endure considerable radio-therapy.

Without even the slightest of exaggeration, we would ensure that the backdoor of my friend’s house remained completely uncluttered of cars and dustbins etc because his brother would come from the hospital, park as close to the door as possible and would crawl, genuinely crawl on the floor to get inside. Such was his pride.

My friend would promptly present him with what was termed a ‘Camberwell Carrot’ and after about 30 minutes of contented puffing away, the two brothers would get up, go upstairs and play Dungeons and Dragons (or whatever the game is that requires 16 sided dice) until the early hours of the morning.

Obviously, this is an extreme case. And admittedly, the two brothers utilised this plant material recreationally as well as medicinally. The salient point however, is that it makes a meaningful difference. To get stoned requires a hearty dose to near saturation. To enjoy the benefits medicinally however, can require only trace amounts.

Meanwhile, we are perfectly within our rights to aspire to cirrhosis of the liver, by legally drinking a pint of vodka on a daily basis. So yeah… the law makers are really just out to look after us…

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Morning, I looked on the web, the mental health charity Sane state the following:

“Use of Cannabis can cause a condition called Drug-induced psychosis. This usually passes after a few days. However, if someone has a predisposition to a psychotic illness, cannabis may trigger the first episode of an ongoing condition such as Schizophrenia. There is increasing evidence that regular cannabis use precedes and even causes higher rates of psychotic illness. At the same time, many people with Schizophrenia have not used cannabis.”

https://www.sane.org/mental-health-and-illness/facts-and-guides/cannabis-and-psychotic-illness

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Hi Lenney,

This is completely correct. My friend had a psychotic episode when he was 21 from smoking hash and has not been the same since. I was actually with him when it happened. It wasn’t pretty. He is bipolar. Before this happened, he was an incredibly happy and well liked. He is very intelligent but has never worked. He has lost many of his friends because of illness. It is such a shame because he was really outgoing before this episode. I suppose it is the same with any illness. They all have triggers and smoking hash for people with a predisposition for bipolar seems to be one of them. Has smoking hash ruined his life or has being bipolar? Obviously, being bipolar has but maybe it would never have surfaced if he hadn’t indulged. I do agree with Paola though, alcohol is equally as bad.

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I just thought I’d share this with you. Seems like it is very bad for you.

Hi Smurphy,

Just wanted to add that I too was a regular smoker (first started behind the school toilets!!). After many years of trying to stop, with a couple of periods of 6 months or so really not smoking egigs were invented. I tried tried them as an alternative to all the different nicotine replacements and for the past four years I’ve been ciggy free. Hurrah!!

Even a hardened smokers like me can quit the evil weed. I know that nicotine is more addictive than heroine, or so I’ve been told, so its got its hold on your for ever. Once an addict always an addict. I use the nicotine ones. But, don’t despair, please give ecigs a try. They’re much cheaper than cigs anyway. You can put the pennies saved towards something you really want or need!

Good luck with whatever you do.

Kind regards, Anne

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Hi everyone,

Just wanted to say a massive thank you for all the advice! Really helpful to hear from you all and your experiences and I think I really do need to knock smoking on the head but if I just managed to cut down then that is also not the end of the world.

I’ll keep you updated!! x

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I smoked 30 a day for nearly 30 years; I tried patches, inhalators, hypnotism, even good old cold turkey, but nothing could loosen the grip that smoking had on me - not even seeing my mother die of lung cancer, & my sister (at 48) of a heart attack.

I was resigned to being a lifelong smoker. But, the cost was becoming a huge problem, and so I decided to give e-cigs a try - not with any intention of giving up smoking, but just as a way to help me cut down on the number of fags I smoked, & save a bit of money.

And yet, within 3 weeks of trying my first e-cig, I had stopped smoking - without even trying! That was just over 3 years ago; I do still use the e-cigs (though now with much lower nicotine content, & I plan to be nicotine-free by the end of this year), but have never craved cigarettes.

I can’t say I’ve noticed much effect on my MS symptoms since I gave up smoking, but I do sleep better & my appetite is improved; we’re also better off financially (I’m ashamed to think how many thousands of pounds I squandered over the decades) - and I smell a lot better, too!

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As a serious smoker, I struggled but did stop via will power for a couple of years, however after restarting I then read the Alan Carr book “The easy way to stop smoking” and despite being sceptical and cynical, I did stop with ease about 25 years ago. The premise is that the chemical addiction is only strong for a few weeks, the rest of it is habit. Get past the chemical bit and substitute the habit. If you swap the notion that you are denying yourself with the notion that you are giving yourself something and doing yourself a favour it is not as tough as it may seem.

Good luck

Mick

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I just searched Google and Amazon . Name correction Allen Carr

M

“The study found the disease progressed from RR to SP 4.7 percent faster for each year after diagnosis in those who continued to smoke.”

At which point would it reach 100%? Does anyone actually understand what this means? Is the equation for compound interest required for this calculation? Is all the above merely an academic conversation? Aren’t we all playing the percentages?

Yours,

‘Baffled’

P.S. I like the Alison’s impression of Clint Eastwood best; Do you feel lucky punk? Well do yah?

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Have you considered switching over to e-cigs while you break the habit? I had a pretty hard time quitting until I tried that, then it was much easier.

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That rules out smoking then. Unless you count smoking food as a preservative. I never did like kippers.

A.

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I was intrigued by the title you mentioned so looked it up. It’s fascinating reading. For interested people, see http://www.nationalmssociety.org/NationalMSSociety/media/MSNationalFiles/Brochures/Brochure-History-of-Multiple-Sclerosis.pdf

It’s only 12 pages long so a fairly quick read and a fascinating one. For example, the fact that in the 1970s, the average time for diagnosis of MS from first attack was 7 years, but the use of MRI brought that down to 6 months (I know for many people it’s still a very long time).

Thanks for drawing my attention to it.

Sue

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thanks for the link.

i am so grateful for living in this information age, especially as during my childhood, we never had it this good; appreciation enhanced!

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Me and my husband packed up our 20+ years habit after I was diagnosed. We’d already moved to low tar ciggies a bit before in a futile attempt to give up, so we did the cold turkey thing and went nicotine free. We bought a big stash of disposable e-shisha sticks? Some flavours were better than others, my general choice was blackcurrant or mango, ultimate fave was licquorice

I think we used those for 3-4 months then slowly just didn’t bother. Seriously, I’ve given away at least half a dozen to people trying to pack up and possibly still have 1 more stashed somewhere for ‘just in case’ but it’s been over 2rs now so I think we did it

Sonia x

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