I am feeling down this afternoon. I have been really positive for a while now so it has taken me by surprise. I am off sick at the moment as I had Lemtrada the week commencing 13th July that week went fine. I had sleeping tablets the week of my treatment to counteract the effects of the Methyl Pred.
I haven’t slept normally since, my fatigue is dreadful, meaning my neck, shoulder and head pain are also crap. I did get warned I might get a flare up of my previous MS Symptoms so I’m telling myself it’s that. I’m frustrated and sad. I WANT MY LIFE BACK!
Sorry for the negativity. When I try and tell friends and family how I feel it just makes them sad and makes me feel bad. I don’t want to be self pitying and keep telling myself there are others far worse off. Today is the first time for a long time that I’ve properly cried but now I have I’m finding it hard to pick myself back up.