This is a long shot but I am wondering if anyone has any ideas.
I am having a relapse of old symptoms. I have nagging ache pain (muscular I believe) in my neck and shoulders (when really bad it is also in the back of my head) it is worse on the right (I am right handed) I wake up and go to bed with it and it’s really getting me down. It’s worse when my fatigue is bad. When it’s bad my arms feel heavy.
I have tried Paracetamol, Ibuprofen, Naproxen, Co-codamol & Tramadol non of which are at all effective. I was given Baclofen for foot spasms which I hadn’t tried as I was warned it might effect my walking. I have at my mums suggestion taken it to try and initially it helped was taking 5mg at bedtime to try to sleep better without the pain. After 2 days it wasn’t working so I increased to 10mg. I am currently taking 5mg in the morning and 10mg at bedtime, not sure how much it is helping as I am still feeling the pain. My GP said that was ok for a few days but she doesn’t want me to take it long term.
I have weekly Aromatherapy Massages that I started having to manage this symptom in March when I had a relapse. It was completely under control and normally helps when my neck and shoulders start to get tight. At the moment it just hurts more when I’ve had one. I have massive knots in my Trapezius I have booked acupuncture to try Friday at the suggestion of fellow MSers and my MS team. I use my mindfulness meditation CD everyday.
I have a spike mat and pillow which I lie on which helps, as do baths and tiger balm but all are very temporary relief. I need to get this sorted as I am off sick and don’t feel I can go back until this is better. I have spent the afternoon in bed because it was so bad today.
I spoke to my MS Nurse on Monday who said I’m doing everything they would suggest and has made me an appointment with the Physio but that’s not until the 25th. Will see/ chat to GP tomorrow or Friday just be interested if anyone else has this and how they manage it.