Hi all, I hope you can advise me,
have previously been advised probable MS then ME and then neuro told me to believe in the other neuros opinion of MS and that it was better than the mri results…not looking for exact diagnosis anymore, past caring, its a waste of my precious energy but i do need to try and sort some help with symptoms.
My eyes have been so dry for a few years and now my mouth is suffering dryness too, I am getting ulcers and painful sores in mouth and throat along with swollen gums. I have had a blood test for sjorgens which was negative but i know its not 100% test.
Some days my mouth is better than others but my eyes are always quite bad. is this normal that this disease can fluctuate ( if it is that)
have had swab taken = negative for virus etc
had camera up nose and down throat because i get hoarse too= all clear but referring to speech therapy to strengthen muscles in that area.
had a course of pills for oral thrush = no effect
have removed, in turn, all medication that was likely to have this as a side effect and re introduced.
am now waiting for referral to rheumatology.
please, is sjorgens something thats always prominent or does it appear in waves of worsening symptoms?
its so sore to eat, drink, talk at times. Hubby getting some peace though.
what do people use to treat this and does it work?
thank you very much for reading this far