Anyone diagnosed with Sjogren's AND MS?

I’m scheduled for a CT scan in 2 weeks as a follow up to a suspicious spot found on the MRI during my December relapse. It’s on my salivary gland and could be cancerous, although they say 80% are benign (and that’s what I’m holding onto right now!).

Anyway, the more I read up on it, the more it seems that this is common with Sjogren’s, which is something I’d considered before my MS diagnosis. I’ve always had the dry eyes and mouth, and my teeth have rotted badly in recent years in spite of having no real issues most of my life.

I’m not doubting my MS diagnosis, but I’m wondering if there’s anyone out there who has both.

Hi Norasmum

Not sure if this is any help or not but here goes.

I have had MS for many years, but about 5 years ago was diagnosed with RA as well. This year at my yearly eye test the optician told me the reason my eyes were constantly running was due to dry eye syndrome, and that it appears with lots of people who have RA.

MS and RA are both auto immune so I suppose it is possible.

Hope this helps.

Pam x

It does help, Pam. Thank you! I know that many of us wind up with more than just MS, and i’m willing to grasp at any and all straws here. It’s the waiting game that’s always so hard. They’re now calling for bad snowstorms here, so I don’t even know if I’ll be able to get to my upcoming appointments.

Keep safe and warm, and I hope that the roads will be nice and clear of snow and ice when you need to go to your appointments. Fingers crossed that the spot on your salivary gland is benign.

I don’t have an MS diagnosis but do have dry eyes (yes, the watery eyes dry eyes). And a dry mouth too. These things creep up on you that you just think they are normal until you get to a point where you realise that they are not!

Well, the CT results are in, and I’m feeling slightly better about it all but still concerned. The doctor said all is good and not suspicious, but at the same time he wants to biopsy my neck. So we’re back to the waiting game. He did take the time to explain that, generally speaking, the malignant ones are large lumps that can be felt through the skin. Mine is tiny and was only picked up because of the MRI. Apparently these are quite common and most people don’t know they have one. On a good note, they also scanned my lungs, and everything’s fine there in spite of my smoking habit!

Hi Norasmum

Doesn’t sound bad which is good, hopefully the lumpp turns out to be nothing to worry about.

Good news about your lungs as well.

Pam x

Hello Norasmum

I don’t usually reply to questions on the forum. I am generally wary of social side of the internet and also I usually don’t feel that I have anything worthwhile to contribute. However, the title of your post caught my interest and felt that my contribution might be helpful.

I was diagnosed with MS 19 years ago, but was experiencing symptoms many years before then. My main problem is bad fatigue and its associated symptoms. Anyway, at the end of last year, I was also diagnosed with Sjogrens Syndrome. Some of the symptoms are very similar to MS, including the fatigue. I have now also been diagnosed with chronic kidney disease, which my kidney specialist and rheumatology consultants think may have been caused by the SS. For some while I was experiencing dry eyes, which my optician said was due to age! On reflection, I now realise that I was also sipping water more frequently, due to a dry mouth.

Just wanted to say that it is possible to have both.

Thank you, Beth. That’s good to know. I’ll be sure to discuss the possibility with my neuro when I see him in March. My eyes and mouth have been dry for years. I couldn’t wear soft contacts because my eyes were too dry (they told me I just wasn’t blinking enough!), and it’s not unusual for me to suck on hard candies or cough drops round the clock. Meanwhile, I’m still waiting to get the biopsy scheduled…