Hi, The other day I posted about my 17 yr old daughter who seemed likely to be diagnosed with MS, following ADEM 3 yrs ago, and on-going MS type symptoms (fatigue, joint pain, stumbling, pins and needles, ON, diplopia, l’hermitte’s, etc etc).
Yesterday we went to see a consultant rheumatologist because of her joint pain. They now are questioning whether she has Sjogrens syndrome - apparently this can show up as lesions on brain and spine in MRIs, and it can cause fatigue and joint pain. My d has increased antibodies (called SSB/la) which is an indicator - but apparently pple without Sjogrens can also have this antibody present.
BUT - Sjogrens usually starts for pple in their late 40s and older, and is characterised by dry eyes and mouth, which my d doesn’t have, plus fatigue and joint pain.
So now we are in a whole new turmoil - Sjogrens has an increased likelihood of some nasty cancerous side-effects.
Does anyone have any insights into this? And any advice about what our next step is?