Here’s the latest update from today.
After DX on 12 April (over 15 weeks ago) I have finally today seen my new neurologist, the one who has all the power to sign off the DMDs.
I’m sorry to say but I didn’t like him. He had not read any of my notes and even got my name wrong. He asked me to describe from the begining (4 years ago) what happened when, what was done, what tests I had, what the results were, symptoms etc. Not easy for a fuzzy ms brain…even now I keep thinking of things I forgot to say! Anyway he answered “well I’ve no reason to disbelieve you so I will authorise your MS nurse to start you on DMDs”. At least I got the result I wanted! He said if I have any issues I am to see my ms nurse or my GP and he’ll just see me to check in once a year (best keep notes for next years!)
So I’ve emailed my MS nurse to say we have the go ahead and she’s got holidays booked and no cover so will be hard pushed to see me until mid to end of September!
As ever it feels like two steps forward and one step back, what a tedious process but glad it’s moving in the right direction albeit slowly.