As things stand, no, MS is incurable. Nobody can say they used to have MS. Anyone who does so is either a fraudster or deluding themselves (to put it politely). At the moment, the best any of us could say is that we’ve been blessed with very long remission.
I hope that may change in the lifetimes of some here, although as I’m already 49, I don’t realistically expect to be around to see a cure.
I think stopping DMDs is a very separate issue from being able to say you used to have MS. As medicine stands at the moment, you have to assume you will have MS for life. I don’t mean to sound negative, but there it is. The cure has not yet been found, and if it was discovered tomorrow, it would certainly not mean we’d all get it next week, and that’s the end of MS. These things take years in development.
So being an ex-Copaxone user would have absolutely nothing to do with whether you still had MS - you still would. That part’s a definite.
As to how you’d be without Copaxone - I don’t know. Touch wood, I haven’t relapsed since diagnosis over 4.5 years ago - I’m not on any DMD. Does that mean I can pronounce myself free of MS? Of course not. I’m aware every day that I have it, in hundreds of different ways. Not relapsing unfortunately doesn’t mean feeling well. I felt rubbish for years before diagnosis, and have felt mostly rubbish since, but know I’m still lucky compared to how it goes for some people.
Why are you thinking of stopping Copaxone? I don’t mean it to sound a judgemental question - I’ve never taken a DMD, so am certainly in no position to say anyone else should. I’m just curious what’s getting you down about it. Is it the injecting? Is it side-effects? If it’s the injecting, I certainly understand your sentiments about that. I don’t think anyone can genuinely say they want to do that for life, even if they accept they might have to.
However, Copaxone is starting to look quite old-school compared to the newer drugs emerging now, several of which are pills. There is no plan (that I know of) to migrate people who are successfully on one of the old-style injectables as a priority. I think if you’ve had excellent results on Copaxone, it’s unlikely your neuro would propose a switch.
However, if you are experiencing side-effects, or the injections are really getting you down, it might be worth discussing what other options are open to you, as things are moving on, treatment wise. But I don’t want to give you the illusion one of the others might cure you - it won’t.
Do you have an MS nurse (I do, but never use mine). Can you have a chat about all this?