Hello and good afternoon,
I’m at work and although do not comment often because of work and where my screen is!
I have had MS for 13 years this year and am RR and although have had relaps thank god they have not been too bad but I hate injecting myself. I know we all have to do things that we don’t like but I hate it and hate the time leading up to inject which always hurts and three weeks ago I reacted to the injection site on my tummy and came up with a huge rash the size of my hand which is only now disappearing.
I wondered whether it would be advisable to stop doing it which I have more or less done over the last couple of months and felt no different apart from no sore bits and swellings. I have been taking this for 3 years.
Any advice would be greatly received.
Thank you
Martina xxx
I am sorry you are struggling with the Copaxone. I really think it would be a good thing for you to talk this over with your MS nurse or neurologist as soon as you can, because none of us on here is in a position to answer your question! But you know that anyway.
Has anyone who has been injecting him or herself with DMDs for years not had an ‘Oh, sod this for a game of soldiers’ moment (or two)? I doubt it. It is an outrageous bloody thing to be expected to do, and to add insult to injury, it doesn’t even make you feel any better in the short term and may (as we all know) make you feel worse with site reactions or headaches or whatever. I was on Avonex for 10 years and the weekly dose ended up flung against the wall instead of injected in to my leg more than once.
The big question is, Is it worth it? For me, the answer was a clear yes. My MS was pretty lively from the start, so it was a no-brainer. But we take a lot on trust with these things, and sometimes a person just needs to talk it through with her medical expert to rehearse again those arguments for being on a DMD in the first place and, if appropriate, whether another might suit you better. Anyway, there’s no use you suffering in silence. It’s not a huge deal - it’s just an unsatisfactory state of affairs that (I think) you would feel better for resolving. Good luck with it all.
Alison
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