Forum

Should I contact my MS nurse

I originally had RRMS but now have SPMS. I am usually able to walk around the bungalow or on a bad day use my powered wheelchair and when outdoors I use a scooter (we’re awaiting adaptations to the bungalow as I can’t get the wheelchair out and I can’t access the toilet/bathroom with it). Unfortunately after a severe spasm in the calf of my leg when I went to get up this morning, I’m not able to move my right leg at all and my left one is not strong enough to stand on for more than a few seconds.

This is the first time this has happened since my RR days and I’m in a bit of a dilemma for the reasons I’ve given. I contacted my OT this morning & she’s going to organise some equipment for me until the adaptations are done & I’ve rung the Dr as suggested by her, who has prescibed a 5 day course of steroids, which I’m dreading! He asked if I’ve spoken to my MS Nurse which I haven’t & I haven’t an appointment any time soon so I don’t know whether to send her an email or ring her secretary. I’ve never had to do this before as I had regular appts with her & I hate having to trouble her as her workload is great and I don’t know what she could anyway? Any thoughts please would be much appreciated.

On a lighter note, isn’t the weather glorious

Yes contact her, a phone call doesn’t take up much time and she needs to know how you are progressing. Among other things she may be able to suggest another medication to alleviate your latest symptoms. Hope you start feeling better soon. Jan x