Going through another relapse???, was just getting over the a relapse (Nov) then my wonderful dad past away on 3/1/14, hence stress is an understatement!!!.. They say it gets easier, its early days… To be able to pick up the phone and speak to him would be so great. We would talk for ever, hours, he was always there for me and I’m struggling to stay strong and positive, my daughters are very teary too… they’re young and its hard to explain about their grandad…
I had to attend hosp as my mobility was so bad, hence I started steroids and am now onto my 3rd and final week, 3 tabs a day. but my legs over the past 2 weeks have been unbearable… burning sensations. My feet feel totally frozen, but they’re not… Tried socks, thermals, nothings working… But its my legs which are the worst, any clothes, blankets makes legs worse. Bed is extremely difficult with the blankets. I’m thinking its the steroids, any views/helps appreciated. Thanks x
Really sorry about the loss of your dad and that you are going through a relapse. You could certainly do without a flare up at this time. Stress ful situations certainly makes my MS symptoms flare up,I remember when my dad was ill and susequently passed away I suffered a relapse too. This was just over 3 years ago. I had a course of steroids which did help me I had 5 tablets for 5 days. I’m sure once the steroids start working for you and dampen down the inflammation you will start to feel better. Are you on any other meds. I take amiltrptiline for nerve pain which helps when I get the burning sensations-they also help you get to sleep. After the relapse I had following my dads death I started on DMDs-firsty rebif and I’m now on copaxone which has cetaintly helped prevent relapses.
Things will get better for you-just try and rest as much as you can,make time for yourself and also allow yourself to grieve for your dad. If you don’t see any improvements in a week contact your MS nurse(if you have one)or see your GP to see if they can suggest anything for you.
I’m so sorry for your loss. I completely understand how you feel as I lost my mum 2 years ago and it was devastating. We used to go to bingo together every Friday night and I still go with my friends but it’s just not the same. We all changed seats as I couldn’t cope with the space where she should have been … It does get easier with time and it doesn’t hurt so much but I will never stop missing her and wanting to talk to her. For now, cry as much as you need to because bottling it up doesn’t help. We found that we needed to look through the family albums with dad and talk about her lots to remember all the good times and although we cried buckets it was good to think of her smiling and having a good time with us.
Take time to rest lots during this relapse (I know it’s not easy with kids). I had completely numb/freezing feet once too and I don’t have any answers for that. When the steroids kick in then the feeling will come back so you will just have to be patient. As Cathy says if your legs are painful then your MS nurse should be able to help. I also believe you can get a gadget that lifts the blankets off your legs so you can stay warm but still comfortable. You could ask her/physio/OT about one of those perhaps? Your MS nurse could probably point you in the right direction for that.